I want to help raise money to support others journeys, help others get a diagnosis quicker and raise awareness!

My story - 

Going back on my journey, it all began in December 2017 (when I was 23) when I had my first admission into hospital for suspected ‘appendicitis’ where I was drugged straight up with morphine to help ease the pain. Days went by, bloods and scans came back as clear from infections and inflammation, and I was told it wasn’t my appendix but instead, they didn’t know what it was. After 7 days in hospital I was discharged with ‘severe IBS’ and many tablets to take daily. 

Another month went by, pains kept coming and going, but these were pains I could handle at home. Then more months went by,  admissions after admissions into hospital, told time after time that it was IBS and just to go home. 

These were pains that saw me crippled in pain, shouting for Stuart to phone 111 or an ambulance, pain that I couldn’t move off the bathroom floor, and pain that got so bad that Stuart has had me pass out on him early hours of the morning.

In January 2020 I was FINALLY referred to a gynaecologist where he said all the symptoms I was getting was linked to endometriosis but the only way to diagnose was through an laparoscopic operation. I FINALLY received my operation date that was for April 2020 but as it got closer, it was cancelled due to COVID!

In May 2020, I had my most recent admission into hospital where I had to go it alone due to COVID, morphine pumped into me straight away, tests again for appendicitis, 4 days in hospital not being allowed to see anyone and sitting around with nothing they could do as they weren’t allowed to operate on me due to the pandemic and it ‘not being an emergency’. I went home.

After 3 month, I finally got my rescheduled appointment date for 25th September 2020. The day came, i had the operation, I came out of recovery and the consultant explained to me that he had cut away endometriosis tissue from my ovaries and my bladder. THIS WAS SUCH A RELEIF, I FINALLY HAD A DIAGNOSIS, I COULD FINALLY START TREATMENT AND GET MY SELF SOMEWHAT BETTER!

After that operation, I could actually now say when I was having a flare up, I knew what my body was fighting and I could somewhat deal with it at home.

Since then, I started ‘early-menopause’ at the age of 26 where I am dealing with the hot flushes, the tiredness and the other side effects BUT the flare ups aren’t ‘as bad’, ‘as bad’ as in I can deal with them at home but I still scream in pain.

Since January 2021, I have still had 5 flare ups and I am awaiting my second injection.

Although I can go through operations and treatment, THERE IS NO CURE FOR ENDOMETRIOSIS! That will not be my last injection, that will not be my last operation, that will not be the end of my journey, that will not be the last of my flare ups, and it will not be my last admission into hospital. IT IS A LIFELONG CONDITION!