Jessica Lawton
My Charity Skydive Over The Isle Of Wight #ThisIsForAdam
Fundraising for Williams Syndrome Foundation
Story
Thanks for taking the time to visit my JustGiving page.
I decided a few years ago after seeing my dad jump out of a plane at 10,000 ft, that I would do exactly the same, but do it for charity that is extremely close to my heart. I have chosen the charity called Williams Syndrome. Unfortunately my family and I lost a very special boy, my brother, Adam in may 2010. It was the most shocking, emotional time of our lives, as we lost Adam so suddenly. As we moved forward we looked at how many positives Adam gave us, on his 11 years on this earth. He was an amazing, sweet, beautiful boy, that was full of life and joy every day. He loved music, his family, and the ladies!
Just before he was taken from us, he was chosen to take part in the children's programme something special, which approaches to help and develop language and communication skills with children with disabilities. It really shows off his personality well, click on this link to watch: https://www.youtube.com/watch?v=VFDn5FbXCvA
The reason I have chosen Williams Syndrome is so we can raise awarness of the condition, as not many people know what it is.
Williams Syndrome is a rare congenital disorder that occurs randomly and affects around one in 18,000 people in the UK. It is non-hereditary and causes distinctive facial characteristics a wide range of learning difficulties. Infants often have delayed development and can develop physical and mental health problems, including anxiety and depression in later life. All WS people tend to be talkative and excessively friendly towards adults.
The Williams Syndrome Foundation was formed as a Registered Charity in 1980, with the aims of promoting research and providing help and support for families with affected children. The Foundation acts as an information and advisory service and keeps parents in touch through magazines, events and a nationwide regional network, as well as funding holidays for WS people every year. It also keeps a register of all known WS cases and provides access to professionals to promote research to improve the lives of the WS population.
The WS Foundation is run by families for families and relies is funded entirely through voluntary donations. There are no paid fundraisers and all income goes directly to research and welfare, apart from minimal administrative expenses. The Foundation is supported by a panel of eminent medical/professional advisors.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.