Story
We are holding a welly walk on Friday the 19th of October at 9:30am from Llanechaeron, Aberaeron. Everyone is welcome to join us in raising money for the Bobath centre Wales. This page is for anybody that would like to donate but are unable to come along. For more info. Please email me at serajanethomas@hotmail.co.uk. Here is our story and a little glimpse at how Bobath have been there for us so far.
Our daughter, Clara Elizabeth Rogers was born on the 20th February 2018 at
4.30pm at Bronglais General Hospital, Aberystwyth. When Clara was born she
suffered hypoxic ischemic encephalopathy. This means there was an event that
led to a lack of oxygen to her brain. Clara was so unwell, she couldn’t breathe
on her own, her organs were failing, and she had suffered a severe brain injury.
It felt like she was slipping away. The worst part of that day was when they
wheeled me in from the hospital bed to meet Clara for the first time, but it was
also for me to say goodbye.
By some miracle they eventually managed to stabilize her enough to transfer her
to Swansea and in time, her organs slowly started working. Eventually she was
breathing and feeding on her own. Following an MRI scan, we were told our
little baby girl had global brain damage (damage in every area). We were then
told Clara had a very strong chance of developing cerebral palsy and was
already showing signs of spasticity in her arms, specifically her right side.
Our Occupational Therapist first introduced us to Bobath Children’s Therapy
Centre and we took Clara along with a very open mind. Clara was only 11 weeks
old, so it was just simple things like learning to settle her, finding positions she
would tolerate to play in and most of all, how to sit her comfortably in the
dreaded car chair. Clara would literally foam at the mouth and cry hysterically
from the moment she was put in it.
We have just completed our first baby block of 6 weeks of Bobath therapy and it
has been a life changer. We’ve learnt all about positioning Clara in ways that
will stop her developing bad habits when it comes to posture. We are able to sit
her on our laps and play with her in a way we couldn’t before. The best thing for
us is feeling like we can finally help her and even have more control over the
outcome of Clara’s brain injury. We have even managed to crack the car chair
nightmare through extra support of her arms, she can now do the whole journey
to Cardiff without any tears!
We have now incorporated Clara’s tailor-made programme into our daily lives. It
feels like she is having therapy every minute of the day from holding her to
changing her to playing with her. We are truly grateful to have found such help
and guidance amongst the darkness, we can now look forward to the future,
thanks to Bobath Children’s Therapy Centre Wales.
