Laura Johnson

Amyloidosis Research UK in memory of Tony Johnson

Fundraising for Royal Free Charity
£5,060
raised of £2,000 target
In memory of Tony Johnson
Amyloidosis is a rare, often fatal disease, caused by accumulation of protein fibres, amyloid, in the tissues. The Fund provides invaluable support for research and patients in the National Amyloidosis Centre at the Royal Free Hospital.

Story

On 27th December 2022, at the age of just 66, ex rugby league player, retired police sergeant, loving family man and friend to many, Tony Johnson sadly passed away. 6yrs ago he had just started his retirement with a full service and not a single day off when he was diagnosed with hereditary cardiac amyloidosis. As with his time on the field, Tony battled right to the very end. As a family and community we are heartbroken by the loss but we know that through #justgiving we can raise awareness and much needed funds to ensure future generations conquer this debilitating and life threatening disease.

Amyloidosis is a rare disease caused by damaging build up of abnormal protein fibres, called amyloid, within the tissues and organs. Amyloidosis can affect any part of the body and lead to life threatening organ failure. It causes the death of about one person in every thousand and there are about 6,000 cases in the UK at any time.

Donations to the Amyloidosis Research Fund within the Royal Free Charity supports the research, development and patients of the UK NHS National Amyloidosis Centre (NAC) at the Royal Free Hospital, where Tony himself took part in a pioneering clinical trial.

Please share this page with all you know and keep us up to date with any fundraising taking place so we can support you and watch the total grow in Tony’s memory.


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About the campaign

Amyloidosis is a rare, often fatal disease, caused by accumulation of protein fibres, amyloid, in the tissues. The Fund provides invaluable support for research and patients in the National Amyloidosis Centre at the Royal Free Hospital.

About the charity

Royal Free Charity

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RCN 1165672
The Royal Free Charity supports staff and patients across the Royal Free London NHS Foundation Trust. From small acts of kindness to huge investments in research, everything we do changes lives for the better. We support our hospitals to go further, faster – delivering impact locally and globally.

Donation summary

Total raised
£5,059.91
+ £1,081.00 Gift Aid
Online donations
£4,924.91
Offline donations
£135.00

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