My daughter Evie was born with a very rare genetic disorder (1 in 25000) called Williams Syndrome - you like I had probably never heard of it.

Like Down's Syndrome it is caused by an abnormality in chromosomes, and shows a wide variation in ability from person to person.  It is a non-hereditary syndrome which occurs at random and can effect brain development in varying degrees, combined with some physical effects or problems.  These range from learning difficulties, lack of co-ordination, muscle weakness, heart defects and occasional kidney damage.  Normal development is generally delayed.

The Williams Syndrome Foundation funds research projects and runs family support programmes for those with WS.  Evie's boundless energy has inspired me to do the Stroud Half Marathon on the 21st October to raise some money for the cause.  I'd never done much more than 5k on a treadmill until I signed up !   

Thankyou for visiting my fundraising page and thankyou in advance for any donations, it's really appreciated.  Don't feel like you have to compete - even a £1 donation helps !!

Gareth