Connie Griffin is fundraising for RETT syndrome Association UK

Georgia Strudwick's Fundraising Page

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Raising money for

RETT syndrome Association UK

Charity Registration No. 327309

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives.

Imagine a healthy baby girl start to become a little person; smiling at 6 weeks, picking things up when she’s 7 months old and at 10 months, she’s crawling her way into everything. Imagine her 1st birthday; she sits up without help and smiles at the camera - even saying her own version of “cheese.”

Now imagine that same baby at age 2. She can no longer sit unaided, stops using her hands to do things and starts wringing them all the time. She starts having seizures and by the time she’s 3, she is grinding her teeth and stops talking. At 6, her spine starts to curve, limiting how well she can move. She screams and laughs during the night for no reason and doesn’t respond to or interact with others. By her 8th birthday, she can’t move on her own, can’t talk and pulls away from social contact with others. This is the reality for parents with children who have Rett syndrome. RSAUK is a national charity seeking to make a difference for people living with Rett syndrome by:

Funding research
Supporting families through telephone support, clinics and our network of support advisers
Providing latest information and best practice
Promoting awareness

Page owner

Connie Griffin

Page closes

16/05/2010

RSS

Raised so far: £1,575.00

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My story

Georgia is the 4 year old daughter of Lisa & Jeff Strudwick who live in Coulsdon, Surrey. Georgia was diagnosed with Rett Syndrome in September 2006.

Girls with Rett Syndrome are profoundly disabled and are highly dependant on others for all of their needs all of their life.
The Rett Syndrome Association UK are a national charity who offer advice & support to people with Rett Syndrome, their families and carers.

Last year Jeff Strudwick and some friends completed a charity bike ride which proved a success; raising around £8,000 for the Rett Association. Following requests from both the event participants and the donators Jeff & Lisa have agreed to conduct 2 events in September 2008.

Jeff and friends will again be completing the bike ride to Brighton and Lisa and friends will be performing their first parachute jumps. All proceeds for both events will be presented to the Rett Association.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: RETT syndrome Association UK gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

Thank you for your support

	Well done to all the runners,cyclists and jumpers! Donation by Paula Nelson 24/09/09	£100.00
	Thank you to April Masson & Nestle UK for donating of 2 Dolce Gusto Machines Donation by Connie Griffin 19/05/09	£75.00 + £21.15 Gift Aid
	April Masson's Raffle Money for Rett Syndrome Donation by Connie Griffin 23/12/08	£433.00 + £122.13 Gift Aid
	Well done Heps, very mad or very brave! xxx Donation by Andy B 06/11/08	£20.00 + £5.64 Gift Aid
	Well done! Donation by Elisabeth Willis 19/10/08	£5.00 + £1.41 Gift Aid
	So inspirational! Excellently done! Donation by Kathy 09/10/08	£15.00 + £4.23 Gift Aid
	Well done Heppers!! See, I knew you had it in you!!xxxx Donation by Tasha 02/10/08	£25.00
	Well done! Donation by Romana Milo 01/10/08	£5.00 + £1.41 Gift Aid
	cracking effort Donation by Mark o'C 30/09/08	£20.00
	Well done Sarah!!! Donation by Laura Clark 29/09/08	£10.00 + £2.82 Gift Aid
	well done Sarah Donation by Reg Johnson 29/09/08	£5.00 + £1.41 Gift Aid
	Well done all on the bike ride - and good luck with the jump! xx Donation by Ilona Garrigan 27/09/08	£15.00 + £4.23 Gift Aid
	Good luck woman! now sponsor me for my run nxt wk JG:franceshallworth Donation by Fran H 26/09/08	£10.00 + £2.82 Gift Aid
	Well done - am so impressed! Donation by Emma Brook 26/09/08	£5.00 + £1.41 Gift Aid
	Wow Keep up the good work Donation by Helen Johnson 22/09/08	£5.00 + £1.41 Gift Aid
	good luck honey eagles!! Donation by dave loomes 20/09/08	£5.00
	Good luck! x Donation by Hayley Meredith 19/09/08	£5.00 + £1.41 Gift Aid
	Good luck to everyone doing the bike ride with me and roll on our parachute jump girls!!!!!! cant wait Donation by Sarah Hepworth 19/09/08	£20.00 + £5.64 Gift Aid
	Donation by Arun 19/09/08	£10.00 + £2.82 Gift Aid
	Let's hope you have adequate padding!!!!!!! Best of luck Donation by Barry Plummer 18/09/08	£20.00 + £5.64 Gift Aid
	Good luck Donation by Tony Luckhurst 18/09/08	£25.00 + £7.05 Gift Aid
	Good Luck - ride like the wind!! Donation by Tom Moore 17/09/08	£10.00 + £2.82 Gift Aid
	Good luck and have fun Donation by Nicola Baldock 16/09/08	£10.00 + £2.82 Gift Aid
	Good Luck Donation by Fran,Phil Bennett 15/09/08	£20.00
	Good luck! Donation by Pete Pennekett 15/09/08	£20.00 + £5.64 Gift Aid
	Good Luck Donation by Donna Lander 11/09/08	£10.00 + £2.82 Gift Aid
	Good luck from Charlotte, John and Lily X Donation by Charlotte L 11/09/08	£15.00 + £4.23 Gift Aid
	Good Luck Daddy! Donation by Jake Strudwick 10/09/08	£5.00 + £1.41 Gift Aid
	Good Luck Gary Donation by The Cullums 10/09/08	£10.00 + £2.82 Gift Aid
	Good luck Gary Donation by Penny Clarke 10/09/08	£10.00 + £2.82 Gift Aid

Donate now

* Total raised online:	£1,575.00
Offline donations:	£0.00
Gift Aid plus supplement:	£349.18

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