Story

Find out more about Grace and watch her video on Grace's webpage: www.gracesfund.org

Thank you to everyone who has helped us get close to our original £50k target. We've now increased our goal to cover another year of Grace's ongoing therapy costs, to help her reach her full potential once she returns to the UK.

If you'd like to organise a sponsored event for Grace's Fund, you can link it to our team page at www.justgiving.com/teams/graces-fund

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About Grace

Our daughter - Grace Windram - is 5 years old and has Spastic Diplegia Cerebral Palsy. This condition (caused by damage to the brain in late pregnancy / birth) means her movements are severly affected, in particular her lower body.

As a result, Grace cannot stand or walk, and other movements are a real struggle. In addition, the spasticity (tightness) in her legs cause discomfort, which will worsen as she grows.

 

Treatments

Now there is real hope for Grace to lead a much more independent life. Grace has been accepted for an operation in the US called Selective Dorsal Rhizotomy (SDR). This procedure (undertaken by Dr Park at St. Louis Children's Hospital in Missouri) involves severing certain nerves in the spine which are sending the 'bad' signals to her legs, and therefore permanently reduce / remove the spasticity. In over 2,000 cases, it has had a 100% success rate. Dr Park believes that after the operation, Grace will be able to learn to walk in a walker, possibly with crutches and maybe even unaided for short distances.

Grace desparately wants to walk like her friends and this operation may just make her dream a reality. It also brings a host of other health benefits that will help her later in life.

After the procedure, Grace will probably need a second operation to release her heel cords and hamstrings, and a LOT of physiotherapy. As well as intensive physiotherapy in the US and at home, she will continue to attend the Footsteps Centre in Oxfordshire 4 times a year.

 

Grace's Fund - Fundraising Targets

The cost of our trip to the US will cost around £40,000. This includes the cost of the operations, physiotherapy treatment over there, flights and accomodation, and medical equipment that needs to be purchased.

In addition, Grace will need intensive physiotherapy back in the UK. Private home sessions in the year following the operation will cost around £4,000, and ongoing treatment at the Footsteps Centre will cost £5,000 to £8,000 per year.

This page has been set up for anyone who wants to make a donation to the fund. In addition, friends and family around the country will be arranging their own fundraising events - you will be able to see them as they are arranged through the Grace's Fund team page at www.justgiving.com/teams/graces-fund

Thank-you for your support.

Raising money for

Tree of Hope

Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Tree of Hope offers hope to the families of sick children in the UK who need specialist medical surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives. England & Wales 1043092 Scotland SCO4261 http://www.treeofhope.org.uk

Donations 483

Donation by Anonymous on 22/04/14

£10.00

+ £2.50 Gift Aid

Well done Grace. X

Donation by Gilly Steward on 17/04/14

£20.00

+ £5.00 Gift Aid

A cake donation

Donation by Dorothee Savage on 01/02/14

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 31/01/14

£10.00

Another birthday cake donation.

Donation by Dorothee Savage on 09/11/13

£20.00

+ £5.00 Gift Aid

Donation for a birthday cake.

Donation by Dorothee Savage on 06/09/13

£25.00

+ £6.25 Gift Aid

text donation

Donation by Anonymous on 30/08/13

£2.00

Donation by Anonymous on 14/08/13

£20.00

+ £5.00 Gift Aid

ECM Bake sale proceeds

Donation by Anonymous on 02/07/13

£91.00

text donation

Donation by Anonymous on 02/07/13

£2.00

cupcake.png

Another cake baked, another donation made!

Donation by Dorothee Savage on 27/05/13

£30.00

+ £7.50 Gift Aid

text donation

Donation by Anonymous on 31/03/13

£5.00

text donation

Donation by Anonymous on 29/03/13

£2.00

text donation

Donation by Anonymous on 29/03/13

£1.00

Jumping.png

Good Luck for your visit to St Louis

Donation by Narayan Mukundagiri on 21/03/13

£10.00

Donation by Anonymous on 20/03/13

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 02/03/13

£30.00

+ £7.50 Gift Aid

smileys.png

Unfortunately can't make the quiz on Saturday so just thought you should have the entry fee anyway. All the very best

Donation by Joe Burlington on 20/02/13

Donation by Gillian Steward on 17/02/13

£20.00

+ £5.00 Gift Aid

cupcake.png

For a truly inspiring little Grace!

Donation by Dorothee Savage on 14/02/13

£60.00

+ £15.00 Gift Aid

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Lots of love - Maggie & Norm Smith xx

Donation by Norman Smith on 23/01/13

£20.00

+ £5.00 Gift Aid

Donation by Nigel Longman on 12/01/13

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 27/12/12

£10.00

+ £2.50 Gift Aid

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Recently bought a car from Grace's uncle and he told us about you - so we thought we'd make this Christmas gift.

Donation by Roger & Alison Smith on 19/12/12

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Donation by Darren Medenica on 18/11/12

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£17,872.88
  • Offline donations£43,401.43
  • Text donations£421.00
  • Total raised£61,695.31
  • Gift Aid£3,037.72

* Charities pay a small fee for our service. Find out how much it is and what we do for it.