please sponser me InMemory of Grant Malloch 1978 - 1998
As most of you know i am doing the Coast to Coast cycle ride from Whitehaven to Tynemouth. 148 miles in 3 days
i will be supporting the CDG Trust in memory of Grant Malloch who died from complications of CGD on 4th July 1998.
Grant was a family friend and was only a year younger than me , i knew him from when he was born.
Some of you will have met Grant when he stayed with me for 6 months on his return from living most of his life in canada and will know what an injustice it was that his life was cut short so early because of a rare condition.
CGD is a little known condition which affects only 1 in 100,00 people and research into treatments for this disease is drastically underfunded
The CGD Research Trust is the world's leading specialist organisation involved with Chronic Granulomatous Disorder (formerly known as Chronic Granulomatous Disease), a rare immune deficiency. What is CGD (Chronic Granulomatous Disorder)?
CGD is a rare and life-threatening genetic condition which could affect 8-10 people in a million of us. You are born with a faulty gene in your bone marrow, meaning your white blood cells cannot fight infections as they should. People with CGD have to take powerful antiobiotics and antifungals every day. But thanks to gifts from people like you, our understanding of CGD has hugely improved in recent years. Treatments including bone marrow transplants are increasingly successful. Although still in its infancy gene therapy offers real hope for the future with promising results from recent clinical trials.
We strive to create a better life for those living with CGD through support services for our families and through funding vital research to find improved treatments and a cure for those affected. Over the last 10 years more than £3.6 million has been invested into 39 research projects
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