Havi Carel is fundraising for LAM Action

LAM Patient 24 Mile Bike Ride

bristol bike ride

on 25/06/2006

Photos (1)

oh wow, you need to have Flash player installed and javascript enabled

Team members:

Havi Carel

Raising money for

LAM Action

Charity Registration No. 1096637

Lymphangioleiomyomatosis or LAM is a rare lung disease that only occurs in women. It affects just over one woman in a million and LAM Action is aware of 120 women in the United Kingdom who have LAM. The purpose of LAM Action is twofold. Firstly, it is a self-help group to provide support and encouragement for patients with LAM. The second purpose of LAM Action is to raise money for research as it is often difficult to obtain money for research into a rare disease.

Page owner

Havi Carel

RSS

Raised: 96%

Target: £6,000.00
Raised so far: £5,786.50

Donate now

My story

Hi there!

Thank you for visiting my fundraising page. Please sponsor my 24 mile bike ride to raise money for LAM research. The ride took place on 25 June, 2006 but you can still sponsor me - your donation will be just as useful!

As you may know, LAM has no cure or treatment at the moment. For me and all the other women with the disease, finding a treatment that at least halts the progress of the disease is crucial. At the moment, my lung capacity is about 30% of what it should be for a woman my age (35). I now have to use supplemental oxygen and will eventually be assessed for a lung transplant.

The money raised will go towards patient support and research, in the hope of finding a treatment that slows the prgression of the disease, so women with LAM can be stabilised while searching for a cure. There is so little known about LAM that we cannot hope for a cure to be found in the next few years, but there are some drugs that will hopefully stop the deterioration of our lungs. Therefore we urgently need drug trials to determine which drug can stabilise us. Please help me raise money for this under-researched, under-funded disease.

Another way of helping is by becoming an organ donor. You can do this online, on https://www.uktransplant.org.uk/ukt/Consent.do.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: LAM Action will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Please feel free to forward this page to anyone else who may want to sponsor me.

Many thanks for your support.

Havi

	Wishing you all the best. Keep it up Donation by Vicky and Tavo 29/07/06	£20.00
	Donation by Matt Matravers 15/07/06	£50.00 + £14.10 Gift Aid
	Donation by Evelyn Hoyer 04/07/06	£40.00
	Donation by Hugo 28/06/06	£20.00 + £5.64 Gift Aid
	go havi go Donation by anonymous 26/06/06	£20.00
	Donation by Chris 25/06/06	£20.00 + £5.64 Gift Aid
	Sorry it's late (but still morning, so I presume you've not finished yet)! Donation by Darragh 25/06/06	£20.00 + £5.64 Gift Aid
	good luck! see you on the day Donation by Anna 24/06/06	£24.00 + £6.77 Gift Aid
	Good luck from Leuven! Donation by John Pearson 23/06/06	£5.00 + £1.41 Gift Aid
	Donation by Michael Wilby 23/06/06	£10.00
	really impressed! good luck Donation by chris dowling 22/06/06	£10.00 + £2.82 Gift Aid
	Go Havi! Wishing you all the best Donation by Mahlet 22/06/06	£15.00
	Donation by yb 22/06/06	£50.00
	Bonne route! Donation by Eran Dorfman 21/06/06	£18.00
	Ride well! Donation by Max & Jean 21/06/06	£40.00
	We're thinking of you, Havi, and wishing you all the best. Donation by Al 21/06/06	£100.00
	Donation by anonymous 21/06/06	£20.00
	Hi Havi, Have a great ride, love jeremy Donation by Jeremy M 21/06/06	£20.00
	missing you in the nextdoor office - good luck, Havi, this news was quite new to me Donation by Roger Hillman 21/06/06	£25.00
	good luck Havi Donation by Liran Razinsky 21/06/06	£25.00
	Bon Voyage! Donation by The Bond Street Band 20/06/06	£100.00
	Good luck! Donation by Mark Cytera 20/06/06	£20.00 + £5.64 Gift Aid
	Best wishes Donation by Helen and Daniel 20/06/06	£20.00
	Best of luck! Donation by Jeremy 20/06/06	£50.00
	Donation by drnili 19/06/06	£250.00
	Dear Havi,Warmest wishes of good healthl Donation by Sophie and Eli Grinstein 19/06/06	£60.00
	Good luck Havi. Visit in Somerset any time! Donation by Jill, Bob, John 19/06/06	£20.00 + £5.64 Gift Aid
	Good luck on your ride, and much love Donation by Marie & Ronnie Abrams 19/06/06	£25.00
	Chavi, you are one of a kind. Go get them!! Donation by Adi (Garinkol) Piltz 19/06/06	£50.00
	Donation by Zoe 19/06/06	£50.00 + £14.10 Gift Aid

Donate now

* Total raised online:	£5,556.50
Offline donations:	£230.00
Gift Aid plus supplement:	£616.99

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.