Raised: 166%
Target: £600.00
Raised so far: £993.50
Donate now

My story

 

Thanks for visiting our fundraising page. My son has Juvenile Batten disease. I will never forget the day I received the diagnosis when he was eleven years old. Nothing could prepare me for this news – it was devastating.  He had been such a healthy, active, happy boy. This disease has taken away his sight, his mobility and is now slowly taking away his speech. Whilst we still hope for miracles we will join the other walkers, at Bourton on the Water, in order to raise money for Batten Disease Family Association. As well as funding research and supporting families through the BDFA, we also want to raise the profile of this disease wherever and whenever we can.

The picture on the left is of Michelle, Molly, me and Sue at the start of the walk. It was very wet and windy on the day and took 6.5 hours to complete the full 12.5 miles. In spite of that, we thoroughly enjoyed the whole weekend - meeting with other families and supporters of the BDFA and we fitted in a visit to Guy on the way there and on the way back - so a perfect weekend for me.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor us: Batten Disease Family Association will receive your money faster and, if you are a taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

It's not to late to sponsor us! Many, many thanks for your support. Heather, Michelle, Molly and Sue X

PS No worries if you are unable to donate for whatever reason – thank you for taking the time to read the information on this page as this helps to raise the profile and spreads the message. If you want to know more about this disease and the work the BDFA are doing, have a look at our website on: www.bdfa-uk.org.uk



Well done to you all Donation by Jeff & Mary 08/06/09  

£50.00 + £14.10 Gift Aid

Hope you reach your target! Donation by Nicky,John and Tom 06/06/09  

£50.00 + £14.10 Gift Aid

Excellent cause Heather - We shall be thinking of you love Will and Jules xx Donation by Will and Jules 18/05/09  

£20.00 + £5.64 Gift Aid

Good luck from Chris Jackie Louise & Becky Donation by The Neal Family 15/05/09  

£10.00 + £2.82 Gift Aid

Donation by Stuart 14/05/09  

£10.00 + £2.82 Gift Aid

Enjoy the walk and try to keep dry Donation by Wendy & Dave 13/05/09  

£10.00 + £2.82 Gift Aid

Good luck Heather & Molly hope the weather is fine Donation by Cas & Tony Davidson 07/05/09  

£10.00 + £2.82 Gift Aid

Hopefully no blisters! Donation by Sue Bernard 06/05/09  

£20.00 + £5.64 Gift Aid

Good luck & no Shortcuts!! Donation by Danny Roman 06/05/09  

£15.00 + £4.23 Gift Aid

Fantastic go for it Donation by the other Wendy & Dave 05/05/09  

£10.00 + £2.82 Gift Aid

Good luck Heather, hope the weather is kind to you Donation by Pam Lelliott 05/05/09  

£10.00 + £2.82 Gift Aid

Congratulations on keeping up the good work Donation by Charmaine Swindell 05/05/09  

£10.00 + £2.82 Gift Aid

Enjoy, and good luck with the fundraising... Donation by Nicola Jacobson 04/05/09  

£10.00 + £2.82 Gift Aid

good luck Heather, good luck Mol Donation by Michael 02/05/09  

£10.00

Hope the weather is good Donation by The Henkes 29/04/09  

£10.00 + £2.82 Gift Aid

Have a fun walk, all of you! Donation by Jonathan Wilson 29/04/09  

£20.00 + £5.64 Gift Aid

gospel concert that day - will be singing one for you! Donation by liz tunmer 28/04/09  

£5.00 + £1.41 Gift Aid

I hope you beat your target! Donation by Janet Stride 28/04/09  

£10.00 + £2.82 Gift Aid

Hope you have a lovely day for it! Donation by Gayle Rogers 27/04/09  

£5.00 + £1.41 Gift Aid

walk must be completed for funds Donation by TIM MORGAN 23/04/09  

£10.00 + £2.82 Gift Aid

Donation by Cat Scott 21/04/09  

£10.00 + £2.82 Gift Aid
Donate now
 
* Total raised online: £315.00
  Offline donations: £678.50
  Gift Aid plus supplement: £86.03

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Find out how much it is and what we do for it.