Thanks for visiting our fundraising page. My son has Juvenile Batten disease. I will never forget the day I received the diagnosis when he was eleven years old. Nothing could prepare me for this news – it was devastating.  He had been such a healthy, active, happy boy. This disease has taken away his sight, his mobility and is now slowly taking away his speech. Whilst we still hope for miracles we will join the other walkers, at Bourton on the Water, in order to raise money for Batten Disease Family Association. As well as funding research and supporting families through the BDFA, we also want to raise the profile of this disease wherever and whenever we can.

The picture on the left is of Michelle, Molly, me and Sue at the start of the walk. It was very wet and windy on the day and took 6.5 hours to complete the full 12.5 miles. In spite of that, we thoroughly enjoyed the whole weekend - meeting with other families and supporters of the BDFA and we fitted in a visit to Guy on the way there and on the way back - so a perfect weekend for me.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor us: Batten Disease Family Association will receive your money faster and, if you are a taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

It's not to late to sponsor us! Many, many thanks for your support. Heather, Michelle, Molly and Sue X

PS No worries if you are unable to donate for whatever reason – thank you for taking the time to read the information on this page as this helps to raise the profile and spreads the message. If you want to know more about this disease and the work the BDFA are doing, have a look at our website on: www.bdfa-uk.org.uk