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About Heidi

I am a carrier of the BRCA 1 gene mutation, which means I have an 85% chance of contracting breast cancer & a 60% chance of contracting ovarian cancer at some point in my life. I have decided to have preventative surgery to bring my chances down to a normal level, so I will be having a double mastectomy in January & an Oophorectomy later next year.

About Vicki

I have a rare form of Congenital Muscular Dystrophy which I was diagnosed with at birth. 

The congenital muscular dystrophies are a group of muscle conditions which usually show symptoms at a very early age. These include ullrich congenital MD, MDC1A and rigid spine syndrome. Congenital means ‘from birth’ and in the great majority of cases of congenital muscular dystrophy the initial symptoms are present at birth or in the first few months.

Babies with CMD often have hypotonia (low muscle tone or floppiness), and may have reduced movements. Other common signs are contractures (tightness) in the ankles, hips, knees and elbows. The contractures can sometimes be severe and affect several joints (known as arthrogryposis). They happen because the baby has not had the muscle strength to move freely enough in the womb. Some of these babies may also have respiratory problems because of weakness of breathing muscles.

Vicki is very committed, organised & has a memory, so she applies that for the both of us!!!! Vicki is already a very accomplished fundraiser for muscular dystrophy & cancer research.

 

 

So please dig deep and donate now.