Please Help Ariella 2 Walk
Event: Ben Sutcliffe's fundraising
£24,483.43 raised of £60,000.00 target
£24,483.43 raised so far
How to make a donation
Donate online at - www.justgiving.com/helpariella2walk
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By text message to donate £10 Text AKSQ87 £10
Ariella, 7, dreams of being able to dance but she needs a £60,000 operation to be able to walk.
A single mum from The Wirral faces a desperate race against time to raise £60,000 for a life changing operation in the United States for her daughter. Suzanne Byrne stands in her living room with her daughter and pretends to dance, but without her Mother’s support seven-year-old Ariella would not have the strength to stand.
Ariella has Spastic Diplegia Cerebral Palsy and can only get around with the use of a wheelchair or by leaning on a standing frame as her legs can’t hold her weight.
At seven-years-old Ariella is at an age when she wants to be playing with her friends or starting to take up hobbies like dancing, she frequently gets visits from the children of neighbours asking if she wants to play but Suzanne can’t bare the thought of her daughter being outside on her own.
“Ariella is a bright and beautiful little girl, she desperately wants to walk and is determined to dance one day but without this operation I fear her childhood will slip away and she will not fulfil her dream.” said Suzanne.
Spastic Diplegia Cerebral Palsy is a permanent brain injury from birth which causes painful spasticity in the limbs and which prevents Ariella from walking independently. She has to wear uncomfortable leg splints every day and relies on a wheelchair or standing frame.
Following Ariella’s diagnosis, her future looked bleak, and the family were faced with a lifetime of operations, botox injections and physiotherapy to ease the rigidity of her muscles to try and make her more comfortable. That was until Suzanne discovered a ground-breaking operation available in the United States which was releasing muscle tension in Cerebral Palsy sufferers and, in some instances, allowing them to walk independently for the first time.
Suzanne commented on the discovery: “Nobody wants to consider their child’s future and face the prospect of endless operations, painful physiotherapy. I want my beautiful little girl to walk, run and dance just like she wants to.”
“By talking to other parents in a similar situation I heard about the treatment in the United States and then discovered how successful it had been for other children, I knew it would save Ariella lots of pain and discomfort as she got older and made an appointment to ask our specialist about it.”
The treatment is called Selective Dorsal Rhizotomy and involves cutting some of the sensory nerve fibres that come from the muscles and enter the spinal cord. The complicated procedure reduces spasticity and it becomes easier for patients to increase strength with therapy and exercise. Children who have received the treatment can often start types of exercise that were impossible before.
The operation is not currently available on the NHS and the Centre for Cerebral Palsy Spasticity in St Louis, Missouri are the World’s leading specialists.
Now, the family from Bebington are doing everything they can think of to raise funds for the treatment at the St Louis Children’s Hospital, but time is running out as they need to raise £60,000 in just 5 months.
National charity, Caudwell Children, is supporting Ariella and other children like her by raising money to fund ground breaking treatments and physiotherapy which can help children with Cerebral Palsy walk independently for the first time.
Head of Public Relations at Caudwell Children, Ben Sutcliffe, commented: “We have witnessed the difference this operation can have on a child’s life and therefore we are offering our full support to the family’s fundraising campaign. Together, we need to raise a lot of money in a short period of time to give Ariella and other children with cerebral palsy the independence they deserve, so I urge anyone who may be able to help to contact the Charity.”
Suzanne added: “Without this treatment Ariella is going to end up being a full time wheelchair user and will miss out on some of the things she is desperate to do, simple things like dancing in front of the TV when we watch ‘Strictly Come Dancing’. I know I am lucky in that Ariella is not terminally ill and there are lots of people in a worse situation than me but I just want to give my beautiful little girl the best life possible, I would give anything to see her dance or even just run around with her friends.”
Anyone interested in helping the Help Ariella 2 Walk Appeal is asked to contact Caudwell Children on 01782 600114 or to donate online visit www.justgiving.com/helpariella2walk
Important note to donors: As long as Ariella requires funds to pay for treatment in the United States, Caudwell Children will manage all payments of funds for the family. All donations made will be added to the Caudwell Children SDR Fund and will be used to help Ariella and other children with Cerebral Palsy in the UK receive this life-changing treatment.
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Charity Registration No. 1079770
Caudwell Children transforms the lives of sick and disabled children across the UK. The Charity provides equipment, treatment and therapies to individual children. Our Destination Dreams programme provides an organised holiday for children fighting life threatening conditions. The Charity has changed the lives of children with over 160 different medical conditions.
THIS DONATION IS FROM A LINEDANCING EVENT DONE ON THE WIRRAL,WE HOPE THAT IT HELPS ARIELLA A LOT, ALL OUR LOVE AND BEST WISHES, CHAY'S STOMPERS
Donation by christine jones on 21/06/11
This is my sponser money from the race hope it helps you to get your dream you deserve it!
Donation by Jessica Hewitt on 27/03/11
Good luck with your fundraising from Roy
Donation by roy shuttleworth on 18/03/11
Donation by Irene Williams on 18/03/11
+ £5.64 Gift Aid
Donation by John Owen on 16/03/11
+ £1.41 Gift Aid
Hi Suzanne & Ariella - so lovely to see you again this morning in the park -hope you raised lots. Good luck - you will do it! xxx
Donation by Debbie Partridge on 20/02/11
+ £2.82 Gift Aid
Donation by Karen Vickers on 17/02/11
+ £1.41 Gift Aid
Good luck from David Jones (Chris's son)
Donation by Chris Jones on 16/02/11
Good luck, And all the best! x
Donation by Thomas Doyle on 13/02/11
From Aunty Doreen and Uncle Gordon good luck with the operation. God Bless all our love x x x
Donation by Aunty Doreen and Gordon on 13/02/11
+ £28.21 Gift Aid
Donation by David Hitchcock on 12/02/11
+ £14.10 Gift Aid
From a lady who couldn't make the concert at Holy Trinity. It was lovely to see you all again on Saturday - keep in touch!
Donation by Chris Jones on 10/02/11
Good luck with everything!
Donation by Terence Allen on 08/02/11
+ £2.82 Gift Aid
Hope this helps you to get there! Lots of love the Lee family (from Thornton Hough School) <3
Donation by Stephen Lee on 07/02/11
+ £28.21 Gift Aid
Test donation from Ben.
Donation by Ben Sutcliffe on 06/02/11
Lots of love Holly, Paul, Guy and Marcus (Fitzgerald!) xx
Donation by Holly Fitzgerald on 26/01/11
+ £56.41 Gift Aid
Donation by Barry Graham on 21/01/11
+ £1.41 Gift Aid
Good luck from Port Sunlight Rugby Club
Donation by Peter Lister on 30/12/10
Good luck with the fund raising! We hope your wishes come true in 2011!
Donation by Paul and Andrea Wilmott on 17/12/10
We hope that your dreams of dancing come true xxx
Donation by Pete & Nic, Wirral on 15/12/10
+ £14.10 Gift Aid
From Holy Trinity Livewires (Tuck Shop proceeds). Chris
Donation by Chris Jones on 11/12/10
Hi Ariella and Suzanne again. This is proceeds from a stall we had at Holy Trinity Christimas Fair today. Love, Chris
Donation by Christine Jones on 04/12/10
Donation by Elizabeth Rafferty on 25/11/10
+ £70.51 Gift Aid
Good luck Ariella! xxx
Donation by Clara Barker on 24/11/10
Ariella - My mother died recently. She used a walking frame like you. She would have wanted to help you. I am donating in memory of her.
Donation by Kathleen Starling on 22/11/10
- * Online donations£4,270.00
- Offline donations£20,213.43
- Text donations£0.00
- Total raised£24,483.43
- Gift Aid£746.59
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