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Chris's London to Paris Cycle

Chris Hill is raising money for Inflammatory Neuropathies UK
“one year on from when my mate, Denis Repard was diagnosed with Guillain-Barre Syndrome, and has made a miraculous recovery ever since.”

on 3 May 2013

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Inflammatory Neuropathies UK is dedicated to helping people impacted by GBS, CIDP, MMN, and over 40 other Inflammatory Neuropathies. We provide information & support (personal grants, counselling, peer support), advocate & raise awareness, and help to fund & facilitate research.

Story

My friend was diagnosed with Guillain–Barré Syndrome (GBS) a year ago last month and has made a miraculous recovery ever since at the age of 26. He was looked after by the staff at Stoke Mandeville hospital and I would like to take this opportunity to thank them for their efforts otherwise he may not be with us right now. Little is known about this disease but please read the extract below to find out more about it but feel it's a cause that I feel strongly about and perhaps needs more support and awareness.
 
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Guillain–Barré syndrome (GBS) (French pronunciation: ​[ɡiˈlɛ̃ baˈʁe], English pronunciation: /ˈɡiːlænˈbɑreɪ/), sometimes Landry's paralysis or Guillain–Barré–Strohl syndrome, is an acute polyneuropathy, a disorder affecting the peripheral nervous system. Ascending paralysis, weakness beginning in the feet and hands and migrating towards the trunk, is the most typical symptom, and some subtypes cause change in sensation or pain as well as dysfunction of the autonomic nervous system. It can cause life-threatening complications, in particular if the respiratory muscles are affected or if there is autonomic nervous system involvement. The disease is usually triggered by an infection.
 
The diagnosis is usually made by nerve conduction studies and with studies of the cerebrospinal fluid. With prompt treatment by intravenous immunoglobulins or plasmapheresis, together with supportive care, the majority will recover completely. Guillain–Barré syndrome is rare, at 1–2 cases per 100,000 people annually, but is the most common cause of acute non-trauma-related paralysis. The syndrome is named after the French physicians Georges Guillain and Jean Alexandre Barré, who described it in 1916.

 

 

Donation summary

Total
£1,880.00
+ £383.75 Gift Aid
Online
£1,880.00
Offline
£0.00

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