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Once again I will be taking part in Hellrunner Down South to raise awareness of the Hope for Hollie campaign and to raise funds for Niemann-Pick Disease Group (UK). This time I have managed to persuade a number of brave souls to be part of the ‘Hollie’s Hellruners’ team and join me in tackling the Hills and Hell and the freezing cold Bogs and Doom!!! The team members are myself (Tanya Lambert), Richard Lambert, Jason Brown, James Knight, Carl Hitchens and Steve Clark. The event will be held on Sunday 27th November.
Hollie is a gorgeous little 6 year old girl, who is so full of character. Unfortunately Hollie suffers from Niemann-Pick Type C (NPC) which is an extremely rare metabolic condition, which causes neurological decline and for which there is currently no cure. Unless a cure is found, Hollie is unlikely to survive into adulthood.
The Hope for Hollie Campaign was started by Hollie's parents, to raise awareness of NPC and to help raise much needed funds for Niemann-Pick Disease Group (UK). For more information on the Hope for Hollie Campaign, please visit their website on www.hopeforhollie.co.uk. To find out more about Niemann-Pick Disease Group (UK) and the work that they do, please visit their website on http://www.niemannpick.org.uk/
One of our team members Carl has also had first hand experience of the devastation of NPC, his little boy Harry sadly lost his battle to the disease last year. Even more devastating is the NPC journey continues for Carl and his family, as their daughter Grace, aged 6, has also been diagnosed with NPC and is now showing early symptoms of the disease. Carl, who has already raised a lot of money for NPDG and children’s hospices, is using this event to raise a holiday fund so that he can take Grace and her twin sister Emily to Disney Florida, whilst Grace is still well enough to go. Donations for the holiday fund will be taken offline.
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