Story
As a late mid life crisis, I decided to attempt to run a marathon when I become 60 years young in 2023.
During lockdown we lost my brother-in-law to motor neurone disease.
Paul was always very fit and healthy, with a good career, and everything to live for. He was a year younger than me.
He contracted MND, as recently highlighted by Rob Burrows.
MND is a fatal, rapidly progressing disease that affects the brain and spinal cord. It can leave people locked in a failing body unable to move, talk and eventually breathe. It kills six people every day in the UK, a third within 12 months of diagnosis and more than half within two years. It has no cure.
Paul was mostly worried about losing the ability to speak and communicate with other people as he had already watched his mother suffer with the same condition (some MND is hereditary at a rate of 1 in 10). complications prevented him reaching that stage.
Gene research has now had some success with hope for further treatments for inherited forms of the disease. Paul had also signed up to help with this type of development whilst he competed with the condition. As a very creative and inventive person, we're pretty certain he would have contributed greatly to that research.
Please help by donating to this page and then in some way Paul will still be helping with the research or assisting others with the condition.
In Preperation for the marathon, I'll be entering some smaller events to monitor my progress and to highlight the work of Motor Neurone Disease association etc.