jayne nangreave is fundraising for RETT syndrome Association UK

Jayne Nangreave's Fundraising Page

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Raising money for

RETT syndrome Association UK

Charity Registration No. 327309

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives.

Imagine a healthy baby girl start to become a little person; smiling at 6 weeks, picking things up when she’s 7 months old and at 10 months, she’s crawling her way into everything. Imagine her 1st birthday; she sits up without help and smiles at the camera - even saying her own version of “cheese.”

Now imagine that same baby at age 2. She can no longer sit unaided, stops using her hands to do things and starts wringing them all the time. She starts having seizures and by the time she’s 3, she is grinding her teeth and stops talking. At 6, her spine starts to curve, limiting how well she can move. She screams and laughs during the night for no reason and doesn’t respond to or interact with others. By her 8th birthday, she can’t move on her own, can’t talk and pulls away from social contact with others. This is the reality for parents with children who have Rett syndrome. RSAUK is a national charity seeking to make a difference for people living with Rett syndrome by:

Funding research
Supporting families through telephone support, clinics and our network of support advisers
Providing latest information and best practice
Promoting awareness

Page owner

jayne nangreave

Page closes

01/12/2009

RSS

Raised: 83%

Target: £2,000.00
Raised so far: £1,662.10

Donate now

My story

Hello my name is Jayne and this is our lovely little girl Lydia. In February this year we had the biggest shock of our lives,our daughter Lydia was diagnosed with Rett Syndrome. Like many people we had never heard of Rett Syndrome, and are still looking for answers as to why Lydia has this problem. I believe setting up this web page will allow me to communicate with other people in the same circumstances for mutual support and help financially contrubute towards finding a universal cure for this cruel illness.

We are not just doing one big fundraising event, we are doing all sorts of little events. Starting off last May my oldest daughter Jessica, 15, did a sponsored 15 mile walk. Now my daughter will not even walk to the local shop which is only a 5 minute walk away so this was a big achievement for her.

Myself will be doing table top sales, coffee mornings.

One of our biggest events will be taking place on the 25th October where my niece, Alexandra and her boyfriend Scott will be taking part in the Great South Run, a 10 mile race in Portsmouth. They aim to raise awareness and money for such a worthy cause.

I am begging you all please to dig deep and donate as little or as much as you can to this site.

Thank you x

	Thank you rachel for holding the swish night round your house, i am so lucky to have so many good friends that care enough to donate for Rett's,thanks Donation by Jayne 26/04/09	£61.00
	Donation from Cathy & Jackie's mum Donation by Teresa Plummer 15/03/09	£10.00 + £2.82 Gift Aid
	Thanks you ladies for a lovely socialable evening, whilst at the same time raising money for retts. Thank you everyone who attended. x Donation by Jackie Ball 15/03/09	£60.00 + £16.92 Gift Aid
	To my beautiful grand daughter, hopfully one day they will find a cure. Love you loads princess xxx Donation by Carmen Currie 21/11/08	£20.00
	Thanks to all my Family and friends that help rise the money on our Swish night and a big thanks to christine for letting us take over her home.xxxx Donation by Jayne 05/11/08	£100.00
	To very special people x Donation by julie Barnard 02/10/08	£100.00 + £28.21 Gift Aid
	money raised by having a Girly night with JO,SARAH,JACKIE,KERRY,CATHY AND CHRISTINE,THANK YOU VERY MUCH GIRLS.XXXXX Donation by jayne 27/08/08	£100.00
	raised money doing a car boot sale.xx Donation by jayne 24/08/08	£30.00
	Words can't say how loved you are&the impact you make on our lives with that smile! All our love Alex and Scott xxx Donation by Alexandra Brooks 25/07/08	£15.00 + £4.23 Gift Aid
	Donation from all at Tourism South East and their 'Go Red for Rett's day Donation by Alexandra Brooks 25/07/08	£61.10 + £17.23 Gift Aid
	To my very special firend who i love lots and lots xxxx Donation by Gabriella 10/07/08	£100.00 + £28.21 Gift Aid
	This is for my beautiful sister who i love very much!xxx Donation by Jessica Haigh 04/07/08	£80.00
	With love from Emma, Anna & Daniel xx Donation by Emma Devine 02/06/08	£25.00 + £7.05 Gift Aid
	i hope this will help in some way all my love to u all xxxxxxxxxxxxxxxx Donation by Timothy Mcgonagle 09/05/08	£50.00
	Donation from John Wiley & Sons Cake Sale to raise money & awareness for Retts- with thanks to the generosity and kindness of everyone that took part Donation by Emily Tye 09/05/08	£440.00
	You are in my thoughts every day, I hope this small donation helps.Love you both xxxx Donation by susie. p 02/05/08	£30.00
	To my dear dear friend Jayne, a small donation to help in a small way. Aside from this I will always be here for you. x Donation by Jackie & Barry 02/05/08	£20.00 + £5.64 Gift Aid
	Donation by luke 30/04/08	£10.00
	I wish I could do more xxx Donation by Elizabeth Windsor 28/04/08	£100.00 + £28.21 Gift Aid
	rather you had this than the parking office! Donation by Dinah 28/04/08	£25.00 + £7.05 Gift Aid
	X Donation by Sue C 27/04/08	£10.00
	X Donation by Denise 26/04/08	£100.00 + £28.21 Gift Aid
	To very special people in our lives Donation by Zoe Killick 26/04/08	£35.00 + £9.87 Gift Aid
	love to you all and good luck with the fund raising Donation by alan julie kirsty and nathan 26/04/08	£10.00 + £2.82 Gift Aid
	Lydia (and Jayne) are such special people and it is so unfair that this has happened to them. I hope this donation will help them to find answers Donation by Angela Waldren 26/04/08	£50.00 + £14.10 Gift Aid
	Donation by Steve 25/04/08	£20.00

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* Total raised online:	£1,662.10
Offline donations:	£0.00
Gift Aid plus supplement:	£200.57

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