Story

Jenson is our amazing 3 year old son who unforntunately suffered from a lack of oxygen whilst being born. He spent the first 2 weeks of his life in intensive care at plymouth hospital. When he was 6 months old he was then diagnosed with spastic diplegia / cerebral palsy. He also developed infantile spasms at this time and spent 2 weeks at Bristol Children's Hospital, this then later developed into epilepsy just after he turned 1. 

We have recently found out about SDR, an amazing operation that could change Jenson's life forever. The operation is an expensive procedure and involves travelling to America to have it done. It also requires intensive post operative therapy but it could lead to many exciting possibilities for Jenson.

We are ultimately hoping this operation will lead to Jenson being able to walk.

Before Jenson can under go the operation we really need to build up his strength which will require private physio sessions, Horse Back riding and specialist equipment that the NHS cannot provide.

The NHS waiting list is very long and the criteria very strict along side far far less experience than St louis Hospital in America. St Louis Hospital have been performing the SDR operation since the 1980's and have a 100% success rate on thousands of proceedures. We dont want to risk any problems which is why we as a family are going down the private route as we only want to best for our boy as anyone would.....

*Update* We have now had our meeting with the NHS and they have declined Jenson due to their very strict criteria. They did however say he would benefit massively from the SDR operation. They will only currently operate on children who can already walk with a walking frame or unaided with minor developmental delay. This now reinforces what we are doing for him privately. 

All funds raised will be spent towards Jenson only with physio therapy, special equipment, the operation with the associated costs and years of physio after the opp the get him on his feet.

We would really appreciate any fundraising ideas or help you can give to make this happen for Jenson.

Updates 19

***UPDATE*** Jenson has been approved for the operation! We are so excited for him. Thanks everyone for getting us this far with the fund raising. Only £2900 to go! Keep up to date on his Facebook page. Search "Jenson's page" dates TBC.

04/03/14 20:10

Please feel free to check out Jenson's progress video on: https://vimeo.com/86836938 This is the correct link not the one below!

16/02/14 20:29

Please feel free to check out Jenson's progress video on: http://flic.kr/p/k7BTa2

15/02/14 20:02

After a quick total update adding all the kind donations we have had in the last few weeks we have smashed through the £60,000 mark! Amazing. With the Video now sent off to America we are ready to set the date. So excited for Jenson. This is his year to really shine! Thanks 2 all

15/02/14 19:59

Well we are nearly at 75% just totally amazing. Thank you everyone so much who has helped us so far. I am totally amazed by the wonderful and generous people all around us. Joel :-)

22/11/13 21:46

Raising money for

Tree of Hope

Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Tree of Hope offers hope to the families of sick children in the UK who need specialist medical surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives. England & Wales 1043092 Scotland SCO4261 http://www.treeofhope.org.uk

Donations 709

Fantastic challenge Ed, hope it all goes well.

Donation by Andy & Amanda on 17/04/14

£50.00

+ £12.50 Gift Aid

Good Luck Ed

Donation by Tania Hockin on 16/04/14

£10.00

+ £2.50 Gift Aid

Good luck to Ed on his marathon challenge. Very impressive - we hope he raises lots for you :)

Donation by The Kelly Family on 15/04/14

£50.00

Superman.png

Quite a Challenge, Ed!

Donation by Russell Cook on 15/04/14

Good Luck Ed! x

Donation by Aoife on 15/04/14

£10.00

+ £2.50 Gift Aid

Good luck Ed xx

Donation by Fleur McGuffie on 15/04/14

£10.00

+ £2.50 Gift Aid

Good luck Ed! Amazing challenge for an excellent cause

Donation by James Ross on 15/04/14

£15.00

+ £3.75 Gift Aid

Ed - 5 marathons in 5 consecutive days! Crazy but impressive!

Donation by Sinnos family on 14/04/14

£75.00

+ £18.75 Gift Aid

We wish you the very best of luck, Ed. From The Barrs, Thursley

Donation by Pat and Hilary Barr on 12/04/14

£50.00

+ £12.50 Gift Aid

Best of luck Ed. You are an inspiration to us all and hopefully all your efforts will contribute to Jenson being able to have his operation. We will come along next Friday to see you off.

Donation by The La Costa Family on 12/04/14

£100.00

+ £25.00 Gift Aid

Ed - best of luck mate. Hope you raise all the money required to make such a great difference for Jenson.

Donation by Mark Downing on 07/04/14

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 06/04/14

£20.00

+ £5.00 Gift Aid

Well done Ed from The Brooks xxx

Donation by Anonymous on 04/04/14

£50.00

Good luck Jenson - I will miss you and look forward to seeing you on your feet in September! xxx

Donation by Naomi on 04/04/14

Good luck Ed! x

Donation by JD and Amanda on 03/04/14

£50.00

Best of luck Ed! Team Quiz Akabusi is right behind you!

Donation by Judy Donner on 02/04/14

£50.00

+ £12.50 Gift Aid

donation given to me

Donation by Jenny on 31/03/14

£20.00

+ £5.00 Gift Aid

Go Ed!!! An amazing feat for an amazing little boy.

Donation by Michael, Jackie, Sam & Jack xx on 30/03/14

£50.00

+ £12.50 Gift Aid

Donation by Marie Gould on 26/03/14

£10.00

+ £2.50 Gift Aid

Gooooooooood Luck Spence ! run forrest

Donation by mc x on 24/03/14

£20.00

Good luck Ed, we are all awesomely impressed, fantastic news for Jenson to be getting the treatment he needs. Will be thinking of you while I am eating my Easter eggs!!

Donation by Fran, John, Ali, Ben , Mia Scott xx on 23/03/14

£50.00

+ £12.50 Gift Aid

Donation by Sammy Wilson on 21/03/14

£10.00

+ £2.50 Gift Aid

Well done Ed and best of luck to Jenson

Donation by Alan & Nadine Froggatt on 21/03/14

£50.00

+ £12.50 Gift Aid

Not long now Jenson.Looking forward to seeing you sitting up in the ball pool!! This donation is from my parents as well as James & Jaime x

Donation by Anonymous on 20/03/14

£200.00

+ £50.00 Gift Aid

With thanks to my boyfriend for the wooden treasures xxx

Donation by Shaz&Lou on 18/03/14

£40.00

+ £10.00 Gift Aid

Donation summary

  • * Online donations£25,869.35
  • Offline donations£37,543.02
  • Text donations£453.00
  • Total raised£63,865.37
  • Gift Aid£5,497.94

* Charities pay a small fee for our service. Find out how much it is and what we do for it.