Raised: 65%
Target: £1,000.00
Raised so far: £649.00
Donate now

My story

 

As most of you are aware my eldest son Thomas (who turns 11 this year) was born with rare genetic disorder called Cornelia de Lange Syndrome (CDLS). This condition affects about one in 15,000 live births and leads to both physical and learning disabilities.

This year I have been working with the CdLS Foundation to bring an International Conference to the Brighton Metropole in July . Instead of one family travelling half way round the world to visit one doctor, we are hoping to bring 30 or more doctors to to meet up to 100 families. At the same time we are running a series of seminars and conference sessions to bring knowledge and information to medical, health and education professionals.

As a small family support group you can imagine how difficult this is to do. The Doctors are giving their time freely and we are committed to buying them an economy ticket and paying for their hotel where they will give their presentations and do one-to-one consults with families.

So this is where my challenge starts, my plan is to walk 26 miles (from Worthing Pier to Brighton Pier and returning to Worthing Pier) companied by my father-in-law Graham Hussey and fellow walker Neil Terry, on the 13 June this year. Our aim is to raise at least £1500 to sponsor one or more Doctors attending the conference.

To ensure this event is a success I need your sponsorship!

Please give what you can to this worthy cause.

 

Many Thanks, Jim May

Vice Chairman of the CdLS Foundation UK and Ireland

                                    http://www.cdls.org.uk/Brighton2009/index.htm

Good Luck Donation by Sarah Antram 19/06/09  

£5.00 + £1.41 Gift Aid

nice one jim Donation by Dave 15/06/09  

£5.00

we know you can reach your goal, good luck Donation by kath & graham 13/06/09  

£100.00 + £28.21 Gift Aid

Good luck Jim on your fund-raising walk. Now why aren't you running the 26 miles like the marathon runners?!! Donation by Tania Heward 12/06/09  

£10.00

Good luck, a very worthy cause. Have fun! Donation by Emma Heward 12/06/09  

£10.00 + £2.82 Gift Aid

Good luck boys, you're doing a great job Donation by Debbie May 12/06/09  

£26.00 + £7.33 Gift Aid

All the best ! Donation by Mum & Dad 12/06/09  

£150.00 + £42.31 Gift Aid

Good luck, not too much beer or ice cream... Donation by wiggy 12/06/09  

£10.00 + £2.82 Gift Aid

good luck Donation by Trevor Owen 12/06/09  

£5.00

All the best Jim, hope all goes well Donation by Gill 12/06/09  

£10.00 + £2.82 Gift Aid

Good Luck Donation by Louise 12/06/09  

£5.00 + £1.41 Gift Aid

Have you seen the Simon Pegg film.... ? ;-0 Donation by Mark & Liz 06/06/09  

£26.00 + £7.33 Gift Aid

Good luck guys Donation by Gary Blundell 01/06/09  

£5.00 + £1.41 Gift Aid

The best of luck to you all !! Donation by Jo & Neil Saker 31/05/09  

£20.00 + £5.64 Gift Aid

good luck Donation by marie 29/05/09  

£10.00 + £2.82 Gift Aid

This year Worthing Pier, next year Wigan Pier! Donation by Andrew Borge 19/05/09  

£20.00 + £5.64 Gift Aid

well worth a £1 per mile Donation by Rae & June 18/05/09  

£26.00 + £7.33 Gift Aid

Good Luck Donation by Richard & Becky 18/05/09  

£10.00 + £2.82 Gift Aid

Good luck Guys! Donation by Charlie from Ashdown 16/05/09  

£5.00 + £1.41 Gift Aid

I always support my piers Donation by Jacquie Griffin 15/05/09  

£20.00 + £5.64 Gift Aid

You will be admired by your pier group Donation by Alan Peaford 14/05/09  

£20.00 + £5.64 Gift Aid

Steve will book your marathon place when you finish! Donation by Chris Oliver 14/05/09  

£25.00 + £7.05 Gift Aid
Donate now
 
* Total raised online: £523.00
  Offline donations: £126.00
  Gift Aid plus supplement: £141.87

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