Jonny agreed to make 'The Boy Whose Skin Fell Off' to make EB more widely known and to raise funds for DebRA, the only charity in the UK that provides specialist nursing and welfare for children and adults living with this painful condition.
DebRA also funds wide ranging international research projects, including EB research in genetics, cancer in EB, wound healing and pain management.
As a result of the documentary over £500,000 has already been raised. DebRA has subsequently been able to embark on a long term research programme and may only be two to three years away from clinical trials into effective treatments.
This is, however, an expensive journey and we very much need your support. Please help us make Jonny's wish come true by making a donation here.
Donating through this site is simple, fast and totally secure. It is also the most efficient way to support DebRA. DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
Thank you for reading this.
Raised so far: £79,012.74
Donate now
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Jonny-your story has touch me in ways i can never express. I will never-ever forget you. Donation by Patricia from the US on 26/10/06 |
£100.00 |
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Donation by ruby blanchette on 26/10/06 |
£100.00 |
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Moved and humbled by Jonny's courage and attitude. Donation by Matt on 26/10/06 |
£20.00 |
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Thank you Jonny. When I picture angels with harps, I'll picture you trying to shake things up a bit. Donation by Izzie on 26/10/06 |
£20.00 |
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i was very inspired by johnny's courage, and very touched Donation by beverly stephens on 26/10/06 |
£20.00 + £5.64 Gift Aid |
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I watched this show last night and it was unreal. Jonny was truly a hero ahis story touched my heart Donation by Neil on 26/10/06 |
£20.00 |
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Here's hoping there's no stopping you now Jonny. Truely inspirational and humbling. Donation by Wayne Daigle on 26/10/06 |
£20.00 |
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Jonny said Earth was a classroom...thanks for the lesson Jonny, you were a grand teacher Donation by Coach Frankie Picasso on 26/10/06 |
£10.00 |
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what an unbelievable,brave man-your story touched me deeply. Donation by shamik on 26/10/06 |
£10.00 |
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God bless you, Johnny Donation by dawn on 26/10/06 |
£10.00 |
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God bless you, Jonny! Donation by Christa on 26/10/06 |
£10.00 |
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The show about Johnny was so so inspiring what a wonderful wonderful beautiful child. Donation by Peggy James on 26/10/06 |
£50.00 |
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Donation by Gill Farley on 23/10/06 |
£15.00 |
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the documentary was simply brilliant, and johnny himself was a legend Donation by jybrimble on 13/10/06 |
£10.00 |
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In memory of a heroic young man Donation by Becca on 12/10/06 |
£20.00 + £5.64 Gift Aid |
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Very touching. Best of luck in your research. Donation by Joanna & Dan on 07/10/06 |
£20.00 + £5.64 Gift Aid |
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Donation by vanessa pleines on 02/10/06 |
£10.00 |
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Watched documentary - an amazing person, courage beyond belief Donation by Allie Smyth on 30/09/06 |
£30.00 |
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I watched the Documentary and felt emotional at Jonny's fight. Made me feel very humble - Thank you Donation by Mike Highton on 30/09/06 |
£50.00 + £14.10 Gift Aid |
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Jonny was a truly inspirational human being and continues to be. Donation by Simon on 30/09/06 |
£50.00 + £14.10 Gift Aid |
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God bless you, Jonny Donation by Bryony on 29/09/06 |
£20.00 + £5.64 Gift Aid |
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god bless you jonny,a wonderfull guy.xx Donation by steven workman on 29/09/06 |
£25.00 + £7.05 Gift Aid |
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What amazing guy, truly inspirational Donation by Sue on 29/09/06 |
£10.00 + £2.82 Gift Aid |
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Donation by Linda W on 25/09/06 |
£20.00 + £5.64 Gift Aid |
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Donation by Christoph Hilgenkamp on 16/09/06 |
£20.00 |
| * Total raised online: | £79,012.74 |
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| Offline donations: | £0.00 |
| Mobile donations: | £0.00 |
| Total Raised: | £79,012.74 |
| Gift Aid plus supplement: | £16,441.34 |
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Find out
how much it is and what we do for it.