Jonny agreed to make 'The Boy Whose Skin Fell Off' to make EB more widely known and to raise funds for DebRA, the only charity in the UK that provides specialist nursing and welfare for children and adults living with this painful condition.
DebRA also funds wide ranging international research projects, including EB research in genetics, cancer in EB, wound healing and pain management.
As a result of the documentary over £500,000 has already been raised. DebRA has subsequently been able to embark on a long term research programme and may only be two to three years away from clinical trials into effective treatments.
This is, however, an expensive journey and we very much need your support. Please help us make Jonny's wish come true by making a donation here.
Donating through this site is simple, fast and totally secure. It is also the most efficient way to support DebRA. DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
Thank you for reading this.
Raised so far: £79,012.74
Donate now
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Donation by Anonymous on 04/10/04 |
£20.00 |
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I was very touched by Jonny's story and hope my donation helps someone today with this condition. Donation by Anonymous on 04/10/04 |
£20.00 + £5.64 Gift Aid |
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Donation by Anonymous on 04/10/04 |
£5.00 + £1.41 Gift Aid |
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Good luck in your fund raising efforts; Jonny's story certainly moved my family and myself. Donation by Anonymous on 03/10/04 |
£15.00 + £4.23 Gift Aid |
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Donation by Anonymous on 03/10/04 |
£20.00 + £5.64 Gift Aid |
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just keep up the excellent work Donation by Anonymous on 02/10/04 |
£5.00 + £1.41 Gift Aid |
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I have been meaning to donate for months, apologies it took so long. This is a great cause Donation by Daniel Chappell on 01/10/04 |
£50.00 |
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Keep a lookout for naturalcures.co.uk Donation by John Reed on 01/10/04 |
£250.00 + £70.51 Gift Aid |
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God bless to everyone with this problem. I hope I I've helped some small way. Donation by leslie cowley on 01/10/04 |
£100.00 + £28.21 Gift Aid |
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I nkow it's not a lot, but I hope this helps someone. Donation by Robert Simpson on 01/10/04 |
£5.00 + £1.41 Gift Aid |
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Jonny's film really touched me. May this donation aid your research Donation by Suzanne Fenwick on 30/09/04 |
£5.00 + £1.41 Gift Aid |
| * Total raised online: | £79,012.74 |
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| Offline donations: | £0.00 |
| Mobile donations: | £0.00 |
| Total Raised: | £79,012.74 |
| Gift Aid plus supplement: | £16,441.34 |
* Charities pay a small fee for our service.
Find out
how much it is and what we do for it.