Updated on Sep 26th 2012 at 10:44 PM from the JustGiving API

Thanks to everybody who has donated so far :) it means the world to me <3 xxx

A friend Emma and her partner Dan found out at their first scan they were expecting identical twin girls, although they were very scared they were also over the moon, they had regular checkups and scans but on a scan at 7months pregnant they found out that one their baby girls Seren Rose no longer had a heartbeat, as you can imagine they were absolutely devastated but needed to stay strong for their unborn child Niamh.  Two weeks later on Christmas eve 2009 Emma was having terrible pains so she went to hospital to be checked over, she was told that she had a water infection and had to stay in over night, by the morning she was still in alot of pain and on re examination told she was in labour and had to have an emergency caeserean. she then went down to theatre and delivered my two babies.  Firstly was her sleeping angel Seren Rose and secondly was her little fighter Niamh.  Niamh was taken straight to the high dependancy unit,  Emma says that she cant really describe how it first felt meeting her little girl, she was so tiny and bruised but so, so beautiful and delicate. Niamh spent the first 3months of her life in hospital and did not give up, she caught MRSA and got through it she had Sepsis which can be life threatening but she also got through that. She was so little but so determined and strong, eventually Niamh was allowed home at 3months old but had to go back to hospital a few weeks later for tests as her head circumferance was getting too big.  After tests they were told Niamh had Hydrocephalus (a build up of fluid on the brain) The excess of the fluid puts pressure on the brain which can cause it to be damaged. Niamh had to have an operation which meant having a shunt (a thin tube) implanted in the brain to her abdominal cavity draining away the excess fluid, the shunt will be in place for life. This was another test sent to try Niamh but yet again she got through it. Emma and Dans baby girl came back home but in October 2010 Niamh started doing unusual jerking movements so another visit to the hospital and more tests were done, it was said that Niamh was having infantile spasms which were treated with steroids and luckily this worked as she has never had anymore of the spasms since. After all this in the first year of Niamhs life they thought surely there is nothing else that Niamh would have to face, but we were wrong. At 18 months old we were told that Niamh had Cerebral Palsy, which was heartbreaking for Emma and Dan to hear but another thing as a family they would get through. So thats why I am asking for donations so that they can get through this by giving Niamh the best chance to walk and be the independant little girl she is so desperate to be. The way they can do this is by raising the money to be able to send Niamh to America for the operation which potentially can be life changing for her.  Niamh is such a loving, happy little girl but at times does get very frustrated as she just wants to do everything that all other children are able to do but at present she cant, so please, please support Emma, Dan and Me by making a donation and changing this little girls life.

Every little counts weather its £1, £2, £5 or £100

Thank you for taking your time to read this family's courageous battle's

Jordan

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