Story
Many thanks for visiting my page - here is why I am running the London Marathon...
Neurofibromatosis is a genetic condition affecting around 20,000 people in the UK. It affects mainly the nervous system in which the nerve tissue grows tumors. It occurs in all races and affects men, boys, women and girls equally. There are differences in the two main groups: NF1 and NF2. Some people will be mildly affected with very few health problems. Others will have some serious health problems that mean that daily life is difficult and it restricts what they can do. The Neurofibromatosis Association is a patient focussed charity dedicated to supporting people living with the diagnosis of NF. They are a small charity and need all the help they can get. My sister Jane was diagnosed with NF2 in her late teens. She suffered from multiple tumours and gradually lost her hearing and eventually also lost her sight. Jane passed away from NF2 in 1996, just a couple of weeks from her 24th birthday. I run the London Marathon in her memory. Julie x The science bit: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
Neurofibromatosis is a genetic condition affecting around 20,000 people in the UK. It affects mainly the nervous system in which the nerve tissue grows tumors. It occurs in all races and affects men, boys, women and girls equally. There are differences in the two main groups: NF1 and NF2. Some people will be mildly affected with very few health problems. Others will have some serious health problems that mean that daily life is difficult and it restricts what they can do. The Neurofibromatosis Association is a patient focussed charity dedicated to supporting people living with the diagnosis of NF. They are a small charity and need all the help they can get. My sister Jane was diagnosed with NF2 in her late teens. She suffered from multiple tumours and gradually lost her hearing and eventually also lost her sight. Jane passed away from NF2 in 1996, just a couple of weeks from her 24th birthday. I run the London Marathon in her memory. Julie x The science bit: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.