Thanks for visiting my fundraising page.
I am running the Womens 10k to raise funds for a new charity called SAVEBABIES THROUGH SCREENING FOUNDATION UK. www.savebabiesuk.org
My Nephew Jack was diagnosed at 7 months with Krabbes Disease, a rare gentic illness for which there is no cure. He was diagnosed too late for any treatment and passed away last year when he was only 21 months old.
If babies with this condition are diagnosed at birth using newborn screening methods they can have a chance at life by receiving a bone marrow transplant. In the UK we only screen for 5 conditions when we have the technology and facilities to screen for over 40. Many of these conditions can be managed and controlled by medication and diet. Early detection and intervention is the key.
Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Save Babies Through Screening Foundation UK gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.
So please sponsor me now!
you can email me at x2kmp@yahoo.co.uk
