Karl James

Karl's page

Fundraising for CDKL5 UK
£170
raised of £100 target
by 24 supporters
Donations cannot currently be made to this page
Participants: Friends from the Wite Tiger training centre
CDKL5 UK

Verified by JustGiving

RCN 1149099
We are fighting to give our kids a chance to live long, happy and healthy lives

Story

Thanks for taking the time to visit my JustGiving page.

I'm running the Wild Warrior, a 5k eXtreme obstacle course race, which includes: The Swamp of Doom, Water Slides, Tightropes, Tunnels, Quick Sand, Giant Walls, Cargo Nets, Mud, Water and an Assault Course. I'm doing this run to raise funds for CDKL5, and have muddy good fun doing it! CDKL5 is the genetic condition that affects the daughter of a close family group of friends. CDKL5 is a rare X-linked genetic disorder that results in early onset, difficult to control seizures, and severe neuro-developmental impairment. In 2009 there were fewer than 200 cases worldwide, however, more and more children are being diagnosed as awareness of CDKL5 spreads. All funds raised through JustGiving will go direct to CDKL5.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

About the charity

CDKL5 UK

Verified by JustGiving

RCN 1149099
CDKL5 deficiency disorder is a rare condition which manifests in the first few months of life with rare and complex epilepsy. Children and adults with CDKL5 require life long support. CDKL5 UK aims to support families through direct support and patient advocacy. #Togetherwearestronger

Donation summary

Total raised
£170.00
+ £38.25 Gift Aid
Online donations
£170.00
Offline donations
£0.00

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