Kathrin Baldry

Kathrin's page

Fundraising for Children's Liver Disease Foundation
£824
raised of £500 target
by 35 supporters
Donations cannot currently be made to this page
We fight childhood liver disease to help every life affected

Story

Thanks for taking the time to visit my JustGiving page.

As a baby I was diagnosed with a rare liver disease called Biliary Atresia. At the time I was told that my life expectancy was 18months however this was not the case for me. I survived and managed 16years after an operation at 5weeks old until I started becoming seriously ill. Over the years I had my fair share of hospitalizations but I was lucky as so many other children were a lot iller than me.

Biliary Atresia is a condition in which inflammation develops within the bile ducts around the time of birth. The inflammation can occur is any of the bile ducts both inside and outside the liver. This leads to bile duct damang, reducing the flow of bile, which causes scarring of the liver. The reason why biliary atresia happens is still unknown and with the help from fundraising tests can be carried out to understand why this condition takes so many lives!

Only 20% of people with Biliary Atresia ever go on without needing a transplant however I was not one of these people. In January of 2009 I was told by my consultant that I was jaundice and my liver function tests were gradually decreasing which meant that transplantation would have to be considered. I was so scared but luckily I have amazing family and friends who made it easy to deal with. By the August of 2009 I was in hospital undergoing several assessments to ensure I was well enough to even get through the transplant. Once it had been confirmed that I was well enough I was then put on the transplant list on september 11th at 3pm. 

The next few months were agonising waiting everyday for a call that may or may not come. Finally after 5months of waiting I recieved a call for a liver however this liver had been kept out of the body too long and was unable to be transplanted into me. I felt like I was living a nightmare, not only was I back at waiting but a good healthy liver had gone to waste! Then just over a month later on the 24th march 2010 I recieved a call! This time I stayed calm and made the 3hour journey in an ambulance up to kings college hospital in london. This time it went through and I recieved my liver on the 25th march at 7:30am. 

The CLDF? The children's liver disease foundation has always been in my life since I was a baby and not only have they offered support to me but they have also supported my family. The CLDF put on events where young adults and children and families can meet and offer each other advice, it has been nice to meet other families who have been through the same experience as myself and my family. The CLDF are a group of people who are so caring and dedicated to the families that they make you feel like family. It has always been comforting to know that if I was ever in need for someone to talk to the team members of cldf have always been on the other end of the phone. They do so much for so many families that I feel it is time for me to support them and thats why I am doing this skydive. I have always wanted to do one and I have only just been well enough to do it after having a tube in my chest for 3months last year. 

Please support me and help me raise my goal for this amazing charity! I appreciate all your support!

 

About the charity

UK charity Children's Liver Disease Foundation takes action against the effects of childhood liver disease, providing information, emotional support, research funds and a voice for all affected.

Donation summary

Total raised
£823.56
+ £141.25 Gift Aid
Online donations
£807.56
Offline donations
£16.00

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