I think anyone looking at this page already know's our story by now so I wont go on to much about Rett synrome. I will just say though that Harriet is 8 years old, she cant walk, talk, or feed herself - basic things we all take for granted! I know I am always doing something or asking for something but I cant just sit by and do nothing whilst she deteriorates and looses skills when there is a real chance we could have treatment for her before she becomes a teenager!

Even if it's only the price of a coffee, please donate today and help me get the treatmenty Harriet deserves!