My story

Thank you for visiting my fundraising page. Please dig deep and sponsor me online, and get me on my bike!

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Lowe Syndrome Trust will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Children diagnosed with Lowe Syndrome suffer a most horrendous incurable disease that affects the brain, eyes, kidneys, bones and muscles.  Life expectancy is short.
As you can imagine, it is an uphill struggle competing against larger well known charities but with your support, this rare children's disease and the need for medical research
could be greatly highlighted and make a world of difference to Lowe Syndrome children.

So please sponsor me now!

Many thanks for your support.

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My Teams

My company

My charity

Lowe Syndrome Trust

Lowe Syndrome Trust

Charity Registration No. 1081241

The Lowe Syndrome Trust is a UK Charity formed in June 2000 by parents of a Lowe syndrome child. The charity supports families and initiates and funds medical research into Lowe Syndrome. Lowe Syndrome is a genetic disorder that can occur with no family history, affecting boys and multiple physical and mental handicaps including cataracts in both eyes, muscle weakness (hypotonia or floppy baby syndrome), kidney problems, cysts, brittle bones, arthritis, poor growth, mental impairment with behaviour problems (autistic spectrum disorder) and epilepsy. Sadly the life expectancy for these children is short due to the complications of the disease and the lack of funding to find a cure.

Donations 19

don't forget the padded shorts!!

Donation by David & Judith Kilbourn on 16/06/06

£50.00

+ £14.10 Gift Aid

Boy, you have a long ride ahead of you! You have to finish in 24 hours, right?

Donation by anonymous on 15/06/06

£20.00

Best of luck!!

Donation by Nick Payne on 15/06/06

£20.00

+ £5.64 Gift Aid

Donation by The Harmers on 14/06/06

£35.00

+ £9.87 Gift Aid

Good Luck!

Donation by The van der Helders on 14/06/06

£100.00

Trust you will complete in one day! Only 260 miles

Donation by Malcolm Campbell on 21/05/06

£20.00

+ £5.64 Gift Aid

Good Luck

Donation by Greville Park Limited on 18/05/06

£26.00

Get on your bike!

Donation by Xansa Team on 11/05/06

£200.00

+ £56.41 Gift Aid

Good Luck

Donation by The Rothenbergs on 09/05/06

£50.00

+ £14.10 Gift Aid

Enjoy every mile!

Donation by Andrew Milne on 08/05/06

£25.00

+ £7.05 Gift Aid

Good Luck

Donation by Andy Bolton on 05/05/06

£20.00

+ £5.64 Gift Aid

Donation by Michael Foggin on 05/05/06

£10.00

+ £2.82 Gift Aid

Donation by James Griffin on 02/05/06

£10.00

+ £2.82 Gift Aid

Good luck John!

Donation by Stuart W on 02/05/06

£20.00

+ £5.64 Gift Aid

Have a great time. I will be thinking of you

Donation by Malcolm Leith on 02/05/06

£100.00

+ £28.21 Gift Aid

Go For it Young Man

Donation by Andrew Wilkinson on 02/05/06

£20.00

+ £5.64 Gift Aid

Go for it John!

Donation by EL on 02/05/06

£10.00

+ £2.82 Gift Aid

Good luck John - tell me all about it on the webcam when it is up and running!! Johnboy

Donation by John Hockley on 29/04/06

£20.00

+ £5.64 Gift Aid

Good luck!!!

Donation by Tim Okey on 28/04/06

£5.00

+ £1.41 Gift Aid

Donation summary

  • * Online donations£761.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£761.00
  • Gift Aid£173.46

* Charities pay a small fee for our service. Find out how much it is and what we do for it.