Sarah Poole

Team Rowan Kiddies Onesie Walk

Fundraising for The SMA Trust
£1,742
raised
by 26 supporters
Donations cannot currently be made to this page
In memory of Rowan Macie Poole
The SMA Trust

Verified by JustGiving

RCN 1097765
We fund research into SMA to help find a cure and treatments

Story

Rowan Macie Poole passed away on 23rd November 2012 aged just 18 months after losing her brave fight with the genetic condition Spinal Muscular Atrophy (SMA). SMA is the UK’s biggest genetic killer of children under 2 years old, although there is currently no cure, the SMA trust is working hard with scientists to find one. 

To help raise vital funds and support the work of the SMA trust Rowan's friends mum came up with the idea of a kiddies onesie walk...

Why not join us on our first ever children’s onesie walk (following on from last year’s hugely successful onesie walk for adults – why should they have all the fun!?) If you cannot join us we would welcome a donation :)

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About the charity

The SMA Trust

Verified by JustGiving

RCN 1097765
SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Donation summary

Total raised
£1,741.81
+ £200.75 Gift Aid
Online donations
£1,257.81
Offline donations
£484.00

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