Story
Rowan Macie Poole passed away on 23rd November 2012 aged just 18 months after losing her brave fight with the genetic condition Spinal Muscular Atrophy (SMA). SMA is the UK’s biggest genetic killer of children under 2 years old, although there is currently no cure, the SMA trust is working hard with scientists to find one.
To help raise vital funds and support the work of the SMA trust Rowan's friends mum came up with the idea of a kiddies onesie walk...
Why not join us on our first ever children’s onesie walk (following on from last year’s hugely successful onesie walk for adults – why should they have all the fun!?) If you cannot join us we would welcome a donation :)
Thanks for taking the time to visit my JustGiving page.
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