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Laura's Dragons

David Bletsoe is raising money for Batten Disease Family Association

Participants: David Bletsoe

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Dragon Boat Racing · 4 September 2011

Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Story

<p>Thanks for taking the time to visit "Laura's Dragons" JustGiving page. Our entrepid crew of 11 will be racing against up to 35 other dragon boat teams on the previously serene waters at Lilford on Sunday 4th September; www.nenevalleydragons.org.uk.</p> <p>Laura will be our chief supporter on the day and she is hoping to keep her crew in good spirit.</p> <p>Our boat has been very generously sponsored by the Rotary Club which means that all sponsorship money raised by our crew will go directly to the Batten Disease Family Association.</p> <p>David &amp; Ellen Bletsoe are keen to support the work of the Batten Disease Family Association. They know all too well that this charity has been a vital support to them since their own daughter, Laura, was diagnosed with Batten Disease in 2009.</p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the Batten Disease Family Association and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer.&nbsp;</p> <p>Please help us to reach our target of &pound;2000.</p> <p>&nbsp;</p>

Donation summary

Total
£1,940.00
+ £477.50 Gift Aid
Online
£1,940.00
Offline
£0.00

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