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Target: £4,000.00
Raised so far: £3,980.71
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My story

 

LEA's STORY...

Lea Clarke is a very special little girl who has touched many people in her 6 years.

Born 18th September with her twin, Lea showed no real signs of her difficulties ahead. At 3 month’s old, Lea starting fitting and within 1 month was having 70 plus fits a day. At Addenbrookes hospital they run all kinds of tests, bloods, MRI’s, EEG’s and still no signs were found for Lea’s decline.

After 3 months, Lea was lost in her body, she could not smile or cry, she could not eat or drink and had to be tube fed, she would fit night and day, she had constant chest and lung infections, her digestive system failed, she was registered blind and spent a good 50% of her life in hospital.

At 2 years old, Lea had a 2nd MRI which showed that her brain had shrunk to half the size, Lea still had 70 plus fits a day and the outlook was not good. Then can our ray of light, we read about a little girl, quite similar to Lea, who had been attending the Advance centre and who was making amazing progress. Naturally, we booked Lea in for a consultation.

WOW, within the first week, Lea was eating again, just pureed veg so her digestive system could cope but still…

After the first 3 months, Lea fitting had decreased, Within the first year, Lea was wearing glasses and was diagnosed with short sightedness.

We have been attending Advance now for 3 years, each time the therapy costs £600.00, this does not include travel and accommodation. Each time we go, Lea is assessed and exercises are made to suit her needs. We are then taught these exercises so that for the next 3 months, we give Lea 2 hours of therapy, 6 days a week. It is a large commitment, but one that we are dedicated to.

Lea now only fits at night ( and consultants hope with drug control to stop that!!!), she is now seeing the world quite clearly and each time she is checked by orthoptics, her glasses are changed due to her improving vision. She eats very well but still cannot mange lumps. Her digestive system is now and running fine so she enjoys a fab range of homemade meals.

Without Advance, Lea may not have been here as her decline was steady and certain. Doctors, consultants and all in the medical profession had run out of ideas, with no diagnosis, there could be no cure.

Lea is still disabled, we are under no illusions that she will jump up and start running around, but what we have always wanted for our strong beautiful Daughter is the opportunity to be the best that she can be, to reach the targets that she can and to have a happy life. We are proud of her regardless.

Thank you for wanting to help us, to help Lea in her life.

Jon and Jo Clarke.



Donating through Justgiving is quick, easy and totally secure. It's also the most efficient way to sponsor me: Advance gets your money faster and, if you're a
taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

Well done, a great achievement! Donation by Thorogood Brown Insurance Ltd 09/07/09  

£250.00

Well done all of you!!! This donation is from the ipswich NFU office, cards, Auntie Pamela and Matts Mum.xxxxx Donation by Susan Boorman 30/06/09  

£180.00 + £50.77 Gift Aid

all for a very good cause! Donation by Mike 15/06/09  

£20.00 + £5.64 Gift Aid

Well done, try running it next year!! Donation by Clive Staffod 12/06/09  

£10.00 + £2.82 Gift Aid

Well Done! Donation by Steve T 12/06/09  

£5.00 + £1.41 Gift Aid

Good work guys! Donation by Paula 05/06/09  

£5.00 + £1.41 Gift Aid

60% of the time I'm right every time. Donation by Various 04/06/09  

£50.00

Good Luck!! Donation by Michael Hutchings 03/06/09  

£10.00 + £2.82 Gift Aid

Well Done Guy's I've done all 3 but not in 24 hrs :( hat off to you all!!!!! Donation by Sam Couldridge (Delphi) 03/06/09  

£5.00 + £1.41 Gift Aid

Well Done Matthew Donation by Peter and Chris Ward 30/05/09  

£10.00 + £2.82 Gift Aid

Good luck on your mission Donation by Frank Kent 29/05/09  

£25.00 + £7.05 Gift Aid

Good luck Ant and Co! A most worthwhile cause - best wishes to Lea for continuing improvement. Enjoy the 24 hours, the weather looks nice and warm! Donation by John & Marlys Wright 29/05/09  

£20.00 + £5.64 Gift Aid

Good luck to you all ... I understand that Surgical Spirit is good for keeping the blisters away. Donation by Liz Craggs 28/05/09  

£50.00 + £14.10 Gift Aid

Good luck Donation by Duncan Wells 28/05/09  

£20.00 + £5.64 Gift Aid

Great cause and best of luck Donation by Avraam 22/05/09  

£30.00 + £8.46 Gift Aid

Told you I would eventually sponsor, had to wait for pay day! Donation by Cheetara 22/05/09  

£5.00 + £1.41 Gift Aid

Great video diary Matt. Beware Five Finger Gulley at the top of Ben Nevis !! 21 hours and 51 mins is the time to beat. Donation by John Aspinall 21/05/09  

£10.00 + £2.82 Gift Aid

Good luck chaps. You can do it this year!!! I'LL BE BACK NEXT YEAR!! Donation by Dave Ainsley 21/05/09  

£20.00 + £5.64 Gift Aid

Good luck to you guys. Love the Boorman video diary ! Donation by Steve Pummell 20/05/09  

£15.00 + £4.23 Gift Aid

Enjoy the walk Donation by Rob Davies 20/05/09  

£15.00 + £4.23 Gift Aid

Good luck to you all, you'll do yourselves proud. Treat yourself to a few beers afterwards - you'll need them! Donation by Jo Sampson 19/05/09  

£5.00 + £1.41 Gift Aid

I'm sure your hard work will pay off. Good luck Donation by Juanita Rampley 19/05/09  

£5.00 + £1.41 Gift Aid

Much respect! Donation by Andrew 19/05/09  

£15.00 + £4.23 Gift Aid

Good luck Donation by Stuart Rootham 19/05/09  

£25.00 + £7.05 Gift Aid

Mmmm..... Kendall Mint Cake! Donation by Keith W 18/05/09  

£25.00 + £7.05 Gift Aid

Good Luck Donation by Steve Bradshaw 18/05/09  

£10.00 + £2.82 Gift Aid

Glad to see you putting in some hard work at last! Great cause & best of luck! Donation by NPA Insurance Group 18/05/09  

£100.00

Good luck everyone! Donation by Pete G 15/05/09  

£20.00 + £5.64 Gift Aid

Good luck and eat lots of flapjacks! Donation by Dan Fox 14/05/09  

£20.00 + £5.64 Gift Aid

Good luck guys. A real reality check for us all about the important things in life Donation by Peter Hulyer 14/05/09  

£25.00 + £7.05 Gift Aid
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* Total raised online: £2,680.71
  Offline donations: £1,300.00
  Gift Aid plus supplement: £499.09

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