UPDATE Hi Guys -well I did it yeah!! Lady luck was smiling down on us with the weather and I managed a semi decent time for a fat lass with a dodgy back. Already signing up for my next one.
Thanks to everyone for sponsoring and supporting me in this charity swim it does mean alot xx
I know times are hard and everyone's watching their pennies but if you can just spare me a couple of quid it really would help.
Shannon my beautiful daughter was perfectly healthy until 2 years of age and then she became poorly she lost all of her abilities and could not even sit up unaided, she had trouble eating, sleeping and had rage attacks. Six months later they located a tumour (Neuroblastoma) and here commenced the world of Dancing Eye Syndrome. Three years later and Shannon has learnt to walk and talk again, she is a vibrant, happy child, she has alot to catch up on but has taken it all in her stride. She is delayed educationally but has the biggest zest for life imaginable.
Unfortunately some DES children will never lead a normal independant life.
This illness can affect anyone at any time but is more common in children aged approx 2 years. The DES Trust has provided a huge support to my family and I and it really needs funds to carry out further research into this rare condition.
