Raised: 178%
Target: £5,000.00
Raised so far: £8,907.20
Donate now

My story

 

Lewis: I ran the London Marathon in 4 hours 45 minutes and am extremely proud that I have completed my first London Marathon for Batten Disease.

Tammy (my wife):  I am so proud of all the Lewis has achieved - we were all there to support him as he ran the London Marathon and at 19 miles he was still looking good even though there was another 7 miles to go!

It's not too late to donate and we are really grateful for all the donations we have already received.  All the money raised goes to help support the work of the Batten Disease Family Association.  They are there when I need support or advice, and offer really helpful days for families like us to meet the professionals who work with Batten's.  So make sure you look up Batten's on the website to find out more about this devastating disease.   

Dont' forget to check out the Batten Disease Website for more details about the important work they do to help families like us: www.bdfa-uk.org.uk

Lewis x

good luck lewis love to the family love sarah and jason xxxxxx Donation by Jason Coventry 26/04/09  

£20.00 + £5.64 Gift Aid

Good luck lewis, watching it on the tv now, love to you all xxxx Donation by michelle, ian, yasmin and saffron 26/04/09  

£20.00 + £5.64 Gift Aid

Thanks for supporting BDFA; We (and especially Michelle, who has Juvenile Battens), really appreciate it. Good Luck! Donation by Laurie, Kathryn, Michelle and Amanda Thompson 26/04/09  

£25.00 + £7.05 Gift Aid

In memory of Emma who we lost 3 years ago to late infantile - We live in Eastleigh so if you need any help or advice let me know . Good luck for Sun Donation by Paul & Nikki Whayman 25/04/09  

£50.00 + £14.10 Gift Aid

Go Lewis, we will be there to wave you on in the orange T shirts!! Donation by Heather, Andrew & Ben Marlow 25/04/09  

£100.00 + £28.21 Gift Aid

We'll be amongst the idiots in the orange T-shirts, cheering you on in memory of Emma Donation by Steve, Jane & Joy Parkinson 25/04/09  

£10.00 + £2.82 Gift Aid

You can do it Lew,well done you.Love to all.xx Donation by Marie Gilbert 24/04/09  

£10.00 + £2.82 Gift Aid

In memory of my drop-dead gorgeous son Mark who died of Juvenile Battens 1.2.07. The very best of luck. Donation by Barbra Higgins 23/04/09  

£26.20

Good luck. In memory of Gregory and Donna taken by Battens Disease 36 years ago. Donation by Mickey & Quentin Hylands 19/04/09  

£40.00 + £11.28 Gift Aid

go get em sid x Donation by john & ju 13/04/09  

£20.00 + £5.64 Gift Aid

good luck lewis, thinking of u all xxxx Donation by em, alex, bethan and freya 04/04/09  

£15.00

In appreciation of your efforts and the invaluable work of the BDFA Donation by Harris Family 02/04/09  

£100.00 + £28.21 Gift Aid

Good luck - we shall be waving from Tower Bridge - attired in trendy orange t-shirts! Donation by The Rennie family 02/04/09  

£20.00 + £5.64 Gift Aid

For Emma Donation by Anne & family 01/04/09  

£25.00 + £7.05 Gift Aid

Thinking of you Lewis and your family as you prepare for the marathon. It is a massive committment for you all at this time. In memory of Misha & Nats Donation by Rachel,Pete,Sophie and Zak Griffith 01/04/09  

£5.00 + £1.41 Gift Aid

A small contribution from Jan and the kids per gruelling mile. Thank you Lewis for everything you are doing to help ... run like the wind for Tia. Donation by The Sablitzky family 01/04/09  

£26.00 + £7.33 Gift Aid

With much love from all of us X X X Donation by Dean, Claire, Kian, Kyle, Oran & Bo Anderson 01/04/09  

£20.00 + £5.64 Gift Aid

ryedale caravans best of luck Donation by keith vincent 01/04/09  

£15.00

Good luck mate I would join you but I'm a bit to fat lol!. Donation by Liam,Siobhan and Leah Grist 20/03/09  

£30.00 + £8.46 Gift Aid

All Our Love to your Family x Donation by GT Towing 19/03/09  

£10.00

Sorry didn't make it to your charity event, best wishes x Donation by Cara Hickey 15/03/09  

£10.00 + £2.82 Gift Aid

THe Grimes family will be there with the BDFA to cheer you on! Well done and keep going Donation by Ruth Grimes 15/03/09  

£30.00 + £8.46 Gift Aid

Best of luck it with it all xx Donation by Emma Mc 15/03/09  

£5.00

Good Luck, my love to Tammy and the girls. Donation by Jamz Cunningham 14/03/09  

£50.00 + £14.10 Gift Aid

I heard about your plight through Donna and wanted to support your cause. Good Luck. Donation by Judy Smith at Allen Fencing, Byfleet, Surrey 13/03/09  

£20.00 + £5.64 Gift Aid

Our daughter Heather has Juvenile Battens so we know how it goes. Good luck for the race. We will watch the telly looking for those shoes. Donation by Amanda and Chris Moody 13/03/09  

£50.00 + £14.10 Gift Aid

Gud luck lew, thinkin of u all xx Donation by kelly and jimmy 12/03/09  

£5.00 + £1.41 Gift Aid

Our son Robbie has Infantile Battens so we know this is a good cause! Best of luck! Donation by Belinda and Jonathan Kembery 03/03/09  

£50.00 + £14.10 Gift Aid

My son has Batten Disease - I'll keep it simple - thank you so much Lewis and good luck Donation by Heather Sickelmore 01/03/09  

£25.00 + £7.05 Gift Aid

good luck lewis, thinking of you all xxxx Donation by emily & alex 27/02/09  

£10.00
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* Total raised online: £1,927.20
  Offline donations: £6,980.00
  Gift Aid plus supplement: £489.64

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