Thank you for visiting our fundraising page.
Donating through this site is simple, fast and totally secure. The Jeans For Genes Campaign will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
On 8th February 2005 we thought are family was completed by the arrival of our beautiful little girl, Katie Alana. In May 2005 we were just getting used to having another little person around when she became ill. At first we thought she had a virus but as the weeks in hospital turned into months we knew that she had something more serious. In the September she was diagnosed with Spinal Muscular Atrophy with Respiratory Distress type 1 (SMARD1) - a rare genetic disorder for which both parents have to be carriers of the defective gene and even then there is only a 25% chance of a child being born affected. There is currently no treatment or cure for SMARD1. Katie died 24th October 2005. In July 2006 at 13 weeks pregnancy, we lost a baby boy to the same condition. On 19th July 2007 we were blessed with a beautiful healthy baby boy - Liam Michael. Liam is to be baptised in Braddan Church, Isle of Man, 15th June 2008 and as he is already spoilt with both love and material objects we would like to help others by accepting donations in lieu of gifts.
Jeans for Genes raises funds for research into serious genetic disorders affecting thousands of children as well as valuable advice and support for families. In the UK, 1 baby in every 33 is born with a genetic disorder or birth defect.... that's 1 born every 30 minutes whose life could be affected. There are over 4,000 recognised genetic disorders, some of which have no current treatment.
Your donation, should you choose to make one, will help continue to fund vital research into genetic disorders which will, in time, help doctors and researchers understand and develop new treatments and cures.
Many thanks for your support.
