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www.lucaswashere.com

Anthony Crook is raising money for Spinal Muscular Atrophy (SMA) UK

Participants: Danielle Pender, Anthony Crook, Dan Ziglam

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LUCAS WAS HERE Hanoi to Ho Chi Minh, Vietnam Cycle · 21 April 2009

SMA UK is a national charity supporting anyone affected by spinal muscular atrophy, a rare genetic, neuromuscular condition that causes muscle weakness and loss of movement. We offer support and information and advocate on issues important to the SMA Community.

Story

Thank you for giving to the LUCAS WAS HERE! fund raising appeal for the Jennifer Trust, the charity who have helped all Lucas' family immeasurably after Lucas was diagnosed with the terminal condition Spinal Muscular Atrophy (Type 1). Lucas Hannigan was born on 4th August 2008 and was diagnosed with SMA type 1 on 17th October 2008. He died two months later on 8th December 2008 when he was 4 months old.

1 in 40 people carry the SMA Gene. If both parents are carriers there is a 1 in 4 chance of their children being born with SMA. This has made SMA the #1 genetic killer of babies under 2 years old.

Visit the website www.lucaswashere.com for more information on the training, progress and once Ant, Dan and Danielle set off, photos of where Lucas has been! Or if you are that way inclined we have a Facebook group where you can keep in touch. Just search for Lucas was here.

If you want to know more about Lucas' story or if you too have a baby diagnosed with SMA get in touch with Lucas' mummy Jenny Hannigan via Facebook or e-mail lucaswashere@hotmail.co.uk

*Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation....*


Donation summary

Total
£10,540.00
+ £2,060.38 Gift Aid
Online
£10,540.00
Offline
£0.00

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