Story
We are proud to support Niamh Hurn, who desperately needs to raise £30,000 for a life changing operation.
We are taking part in a 30 mile sponsored walk, which will take place on the Saturday, 28th March 2015 from St Donats to Headlands School, Penarth.
The Hurn family face a race against time as nine-year-old Niamh, who suffers from a form of cerebral palsyl, needs to undergo a life-changing operation before she reaches the age of 10 to achieve the best chance of success.
Niamh, who uses a wheelchair and Kaye walker to move around due to a condition called hydrosyringomyelia - a blockage within the fluid canal in the spine resulting in a crushing of nerves, needs to have a procedure known as a SDR or selective dorsal rhizotomy.
Mum Michelle and dad Chris, need to raise a minimum of £30,000 for the procedure and aftercare in the nearest specialist centre – Bristol Children’s Hospital - as funding is unavailable on the NHS in Wales.
The operation would give Niamh the ability to walk unaided and ditch her splints and orthopaedic boots. Niamh would be free of pain and spasms and able to swallow fluids easily rather than be restricted to thicker smoothie drinks.
Niamh is softly spoken as her lung capacity is half that of a child the same age and she is also prone to infections.
If you would like to help us raise money for Niamh and make her dreams come true, we would be so grateful if you would make a donation.
