Lucy Duncan is fundraising for RETT syndrome Association UK

Lucy Duncan's Fundraising Page

Flora London Marathon 2009

on 26/04/2009

My niece Emma enjoying herself.

Photos (1)

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Raising money for

RETT syndrome Association UK

Charity Registration No. 327309

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives.

Imagine a healthy baby girl start to become a little person; smiling at 6 weeks, picking things up when she’s 7 months old and at 10 months, she’s crawling her way into everything. Imagine her 1st birthday; she sits up without help and smiles at the camera - even saying her own version of “cheese.”

Now imagine that same baby at age 2. She can no longer sit unaided, stops using her hands to do things and starts wringing them all the time. She starts having seizures and by the time she’s 3, she is grinding her teeth and stops talking. At 6, her spine starts to curve, limiting how well she can move. She screams and laughs during the night for no reason and doesn’t respond to or interact with others. By her 8th birthday, she can’t move on her own, can’t talk and pulls away from social contact with others. This is the reality for parents with children who have Rett syndrome. RSAUK is a national charity seeking to make a difference for people living with Rett syndrome by:

Funding research
Supporting families through telephone support, clinics and our network of support advisers
Providing latest information and best practice
Promoting awareness

Page owner

Lucy Duncan

RSS

Raised: 27%

Target: £5,000.00
Raised so far: £1,357.39

Donate now

My story

Thanks for visiting my fundraising page.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: RSAUK gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

Your donation is greatly appreciated by RSAUK, which is a small charity, and every donation makes a difference to those with Rett syndrome and their families. It also helps to keep my training going despite the aching legs!

The picture is of my niece Emma who has Rett syndrome. She is a beautiful little girl but like others with Rett syndrome is completely dependent on the support of family and carers for all her needs.

So please sponsor me now!

	Congratulations Donation by Ian Hempseed 30/04/09	£30.00 + £8.46 Gift Aid
	atta girl! Donation by claire nilsson 24/04/09	£50.00 + £14.10 Gift Aid
	Good luck! Donation by Tim meikle 20/04/09	£10.00 + £2.82 Gift Aid
	All the best Lucy! Donation by Sue Carter 20/04/09	£15.00 + £4.23 Gift Aid
	I think I wish I could do it, but I can't! Donation by Jamie Colman 08/04/09	£100.00 + £28.21 Gift Aid
	Good luck! Donation by Buzz Bury 07/04/09	£50.00 + £14.10 Gift Aid
	Wishing you the best of luck for the big day. Donation by Sarah & Vincent Kilcoyne 03/04/09	£25.00 + £7.05 Gift Aid
	Good Luck ! Donation by Garth/Sue Rees 24/03/09	£30.00 + £8.46 Gift Aid
	You have my unbounded admiration Donation by Robert Valentine 19/03/09	£50.00 + £14.10 Gift Aid
	You're a very determined lady and I know a little marathon is nothing to you! Good luck! Donation by Georgia Sigala 15/03/09	£10.00 + £2.82 Gift Aid
	Go for it Lucy. Best of luck Donation by Ceris Gardner 14/03/09	£30.00 + £8.46 Gift Aid
	I will be in my ususal spot waiting for you to run by. Good Luck ! Donation by Emma Curness 06/03/09	£5.00 + £1.41 Gift Aid
	Good luck! Donation by Mark Giddens 04/03/09	£20.00 + £5.64 Gift Aid
	Good Luck Lucy. Donation by Kashif Siddiqui 04/03/09	£20.00 + £5.64 Gift Aid
	Good wishes for every STEP towards the finishing line Donation by Helen Bryant 03/03/09	£10.00 + £2.82 Gift Aid
	Well done Lucy! You are really brave to do this! Donation by Julia Abrey 02/03/09	£10.00 + £2.82 Gift Aid

Donate now

* Total raised online:	£465.00
Offline donations:	£892.39
Gift Aid plus supplement:	£131.15

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.