Story
2011 - Brighton Marathon registered chip time 04:30:23
2012 - Sussex Marathon registered chip time 05:13:06
Thanks for taking the time to visit my latest JustGiving page.
My daughter Madeline, in the photograph, was diagnosed with Proctitis - ulcerative colitis type (July 2008). This causes ulcers and/or inflammation in the lining of the large bowel.
Anyone can get it, any age, any race, men and women, boys and girls. At the moment, there isn't a cure. It's known as a chronic illness. In other words, the condition is going to be present for many years (perhaps permanently) but a lot can be done to stop the symptoms.
Madeline has spells, very often quite long (called remissions), when she feels fine. If the symptoms recur (called a flare-up or relapse) they can be dealt with fairly quickly. The trouble is, it's unpredictable; it's hard to tell when she's likely to have a relapse or how long a remission will last.
The cause is unknown and until a cause is found, it's difficult to find a cure. There is continuing research, all over the world, and if you'd like to know more about the current research you can contact the National Association for Colitis and Crohn's Disease (NACC) via http://www.nacc.org.uk/content/home.asp#top
Madeline's clinical progress (2011) is that she is managing her proctitis well with the use of topical steriods. Her last bout was quite protracted, lasting up to 5 weeks, however it settled appropriately and she was not systematically unwell.
She does, however, suffer from intermittent spasmodic abdominal pain and some retrosternal discomfort.
Today, 20 August 2011, I've found a new challenge to raise money to put back into the Ulcerative Colitis Research Pot. Madeline is under Dr Assad Butt, Consultant Paediatrician and Gastroenterologist at the Royal Alexandra Children's Hospital in Brighton.
To date, thanks to the support of you - my family, friends and their friends, I've raised over £2000 for various charities including Cancer Research UK, Breast Cancer UK, My New Hair, Perthes Association, and Step-by-Step, a school for autistic children, all of which I've had some kind of direct connection with. My fundraising is personal. I'm passionate about making a difference.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate if you can.
Many thanks for taking the time to consider this fundraising opportunity.
Madeline's mother, Scarlett Cue.