Glucose is a major source of energy for the body. It is stored in the form of glycogen in both the liver and muscles and later released with the help of enzymes. People affected by GSD have an inherited defect in one of the enzymes responsible for forming or releasing glycogen as it is needed by the body during exercise and/or between meals.

Its personal to me because Niamh, who is my eldest daughter's best friend, has GSD. Because of the positive outlook that her mum and dad, Tony and Sarah have, you would never know that Niamh has this condition. However, there are a lot of children that have more severe versions of GSD and are unable to lead as full and active life as Niamh.

Because so few children are born with GSD (about 4 every year in the UK -  there is limited money spent on research, hence why I want to support the association and raise whatever I can. Just a small donation from each of you will really make a difference.

Donating through Just giving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: AGSD gets your money faster and, if you’re a UK taxpayer, Just giving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

Thank you so much for your donation, and I'll do my best not to keel over half way around!