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Mölnlycke Health Care's Fundraising Page

Mölnlycke Health Care is raising money for DEBRA
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DeBra Welsh 6 Peaks Challenge · 9 June 2009

DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We fund pioneering research and provide care and support to individuals and families living with EB.

Story

Hi!

 Welcome to the Mölnlycke Health Care fundraising page! This website provides you with a quick, easy and totally secure payment method for donating to the Mölnlycke Health Care Welsh 6 Peaks Challenge.

 Donating through Justgiving is the most efficient way to sponsor the Mölnlycke Health Care participants: DebRA gets your money faster and, if you’re ataxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.The Challenge?

 The Welsh 6 Peaks Challenge consists of a 24 mile trek which must be completed within the hours of daylight.

 The event will start at 6am on Saturday 8th August 2009 and will take around 10-12 hours.

 

What’s Involved?

 

 • There are two big climbs:

- Snowdon – (1085 meters) this is the highest mountain in Wales.

- Elidir Fawr – (923 meters)

• There are two big descents:

- Snowdon into Nant Peris

- Glyder Fach into Pen-y-Gwyrd

 

About DebRA

 

 DebRA provides an expert team of nurses and social care staff to work directly with families affected by EB, visiting them in their own homes, and by being on 24 hour call should any advice be needed.

 The charity also commissions world-leading research into the condition with the aim of finding effective treatments and, ultimately, a cure for EB. Because DebRA receives no government funding, DebRA relies on the generosity of the public to carry out its vital work, improving lives and giving hope.

 For more information and to view a short video clip showing the reality of living with EB please visit www.debra.org.uk.

 Please give generously and thank you for your support.

 

Why donate to DebRA?

 

Hollie’s story

Hollie was born on 12th March 2004 with Dystrophic Epidermolysis Bullosa (EB).

 Like any other little girl, Hollie loves to dance, play and have fun. But if Hollie bumps herself or her clothes rub, her skin blisters and comes away.  When it occurs in her mouth or throat she struggles to eat or drink until the pain dies down.

 Every morning, Hollie’s dressings need to be removed, her blisters lanced and fresh bandages applied.  This has to be repeated in the evening, before bed. This is an extremely painful process. To try and reduce Hollie’s distress, her mum dyes her bandages a variety of colours to co-ordinate with her daughter’s outfits.

 Without DebRA’s support, Hollie could not live her life to the full. The charity relies on fundraising events to carry out its vital work, improving lives and giving hope to families affected by EB.

 

What can DebRA do with your donation?

 

 £2.50 – 'Scratch Mitts' to prevent a baby born with EB from tearing their own skin.

£5 – A set of easy grip chunky pens to help children hold a pen when their fingers are fused together from repeated scarring.

£10 – A tube of ‘no sting medical adhesive remover’ to help ease the pain of dressing changes.

£25 – One hour of research to bring us closer to finding an effective treatment of EB.

£50 – Accomodation for one parent of a child in hospital.£150 – A pressure relief mattress to relieve the discomfort of sleeping.

£500 – A home aire conditioning unit. Imagine how uncomfortable it is in warm weather hwn your body is tightly wrapped in bandages. An air conditioning unit is essential apparatus to help keep the skin cool.

£1,000 – Support for a child with EB, providing a range of equipment as it is required such as special bed linen, adapted buggies, food blenders, specialist footwear and many more items to bring comfort and relief.

£3,000 – A special cot for an EB child at home.

£10,000 – Support for our 3 mobile homes a year – giving a great many children with EB and their families a much needed holiday break.

£50,000 – Specialist nursing care in the Midlands for one year.

£100,000 – Funding for one of our skin cancer research programmes for 6 months.

 Every donation received, large or small, is important and makes a rela difference to the charity’s work. The money is used as it is received to provide practical and immediate help to the EB community we serve.

 

So who are the participants?

 

Group 1 - Team Mepilex

Craig Randles (Capt)

Jane Randles

Marie Treanor

Mandy Rennel

Lisa Freeman

Group 2 - Team Mepore

Andrew Leach (Capt)

Phil Cooper

Rebecca Carter

Graeme Spriggs

Marie Spriggs

Fiona Kerr

Group 3 - Team Mepitel

Oliver Butler (Capt)

Katie Marshall

Kris Ward

Claire Ward

Adrienne Evetts

Group 4 - Team Epaderm Cream

Tanya Woodbridge (Capt)

David Mazura (V Capt)

Yogi Patel

Anand Chandarana

Simon Marston

So please sponsor us now!

Donation summary

Total
£5,051.00
+ £871.26 Gift Aid
Online
£5,051.00
Offline
£0.00

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