Story

Thanks for taking the time to visit the Mid Life Cyclists Just giving page.

Why we are doing this.....

We are undertaking this challenge to support the Anthony Nolan Trust. This is a charity that was set up in the name of a boy who was born in 1971 with a condition called Wiscot-Aldrich Syndrome.

 

 Wiscott-Aldrich Syndrome (WAS) is a rare genetically inherited immunodeficiency disease that occurs almost exclusively in males. (1 in 250,000 births)

 

As it affects the function of the white blood cells patients with Classic WAS are susceptible to many serious conditions such as leukaemia, lymphoma, and autoimmune disorders.

The only proven cure so far for this condition is a bone marrow or cord blood transplant.  Successfully transplanted patients go on to lead normal lives, completely free from the disease.  For patients with Classic WAS who do not undergo a transplant, the reported life expectancyis between 8-14 years.

Sadly Anthony Nolan died in 1979 as a donor could not be found for his transplant procedure. Following this failed search Anthony’s mother Shirley founded the Charity with the intention of creating a larger database of willing donors.

This database is now available for patients of blood diseases that require treatment.

 

 Lucas' Story

Shortly after he was born my youngest son Lucas was diagnosed with (WAS) which was a devastating blow for my family.

Fortunately, help was at hand from the amazing NHS whose Great Ormond St Hospital is one of the world leaders in treatment of this condition. The transplant team at Great Ormond Street are heavily dependent on the Anthony Nolan Trust to provide donor matches for many of their child transplant patients who don’t have a compatible donor within their family.

 For us parents, the only thing more daunting than our little baby undergoing  chemo-therapy as part of his Bone Marrow Transplant was the prospect of not finding a donor to provide the cells needed to cure him.

 Thanks to the amazing work of the Anthony Nolan Trust a donor search was conducted on their database and one month later we had a 100% match.

I have never been so grateful or moved as I was when a small red bag of donor cells arrived at Lucas’ hospital bedside and was infused into his little body. This amazing gift had arrived from an organization I had never before heard of from a donor we may never meet.

I am happy to report that the amazing team at Gt Ormond St have now said;  ‘it seems we have cured Lucas of his condition’ and he should now be able to lead a perfectly normal life.

……Amazing!

None of this would have been possible without the incredible support and brilliance of both Great Ormond Street Hospital and the Anthony Nolan Trust. We will never be able to express our gratitude and appreciation for all that these organisation’s  have done.

 Lucas is incredibly fortunate to have come through this but he is also extremely lucky to count Andy Rogers  and Alasdhair Willis as his Godfathers who were a huge support to us all through this ordeal.

Whilst sitting in a pub reflecting on it all ‘The Godfathers’ decided that something needed to be ‘put back’  

It was then that the plan for an eye wateringly tough challenge (for us!) to raise £100,000 for the Anthony Nolan Trust was hatched.

 

A bicycle Ride from Lands End to John O’Groats in 10 days.

The longest direct route through Great Britain  - 963 miles / 1550 km

We are very grateful for any donations that help us get to our target and all donations will be added motivation (pressure) to keep us peddling to the end!

Thank you

Ben, Andy, Alasdhair

The Mid Life Cyclists

 

 

 

 

 

 

 

 

 

 

Updates 14

A huge DANKE SCHON to Adidas Global for their donation of €5000. we loved our Adidas kit too...i think it shaved a couple of days off our time!! The MLC's

18/07/13 16:57

We'd like to say a big congratulations and thank you to the newly wed mr and mrs Cox (who's wedding reception in Clevedon was crashed by 3 weary lycra clad cylists) for having a whip round and donating £53 to the casue. good luck to you both. The MLC's

08/07/13 15:07

Thanks to the walkers in Gretna Green who gave us their last 53pence! Every little helps!

08/07/13 15:00

Thanks to Laura the bubbly waitress, bar lady and receptionist from the Moffatt hotel - for a/ your donation and b/ for being on the AN register. we really appreciate it.

08/07/13 14:59

Thanks to Steve Tiffin (white van man from Preston) for throwing £2 at me at the traffic lights. very good of you even though it caused a minor cross bar injury whilst trying to catch it!

08/07/13 14:56

Raising money for

Anthony Nolan

Anthony Nolan

Charity Registration No. in England and Wales 803716, Scotland SC038827

Anthony Nolan is a pioneering charity that saves the lives of people with blood cancer. Every day, we use our register to match remarkable donors willing to donate their blood stem cells to people who desperately need lifesaving transplants.

Donations 314

Sore bums all round. Awesome effort.

Donation by Tim Narey & family on 02/09/13

£100.00

+ £25.00 Gift Aid

Wonderful work guys, what a brilliant achievement and be great to meet for a congratulatory pint soon. Well done all!

Donation by Des on 20/08/13

£50.00

+ £12.50 Gift Aid

Fantastic effort on the ride and the fundraising Ben

Donation by Sam Burch on 17/08/13

£20.00

+ £5.00 Gift Aid

Sorry it's late. Been abroad. Remarkable achievement. So happy to see Lucas so bonny and well. Brill!

Donation by Gill (Good friend of Gaga) on 17/08/13

£60.00

+ £15.00 Gift Aid

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Well done!

Donation by Nana Sarian on 18/07/13

£50.00

Very well done Ben and the boys.

Donation by Sandra and Paul Johnson on 10/07/13

£100.00

+ £25.00 Gift Aid

Well done - great cause.

Donation by Mark Pinkerton on 10/07/13

Well done guys!

Donation by R Williams on 07/07/13

£50.00

+ £12.50 Gift Aid

Loving support to you and your outriders!!!!!!!!! and love for all your family.X

Donation by DA Waters on 06/07/13

£100.00

Donation by ERIC AND WENDY SCHMIDT on 03/07/13

£7,500.00

Donation by ERIC AND WENDY SCHMIDT on 03/07/13

£7,500.00

Nice one ANDY!!! x

Donation by H CHOUDHURY on 03/07/13

£50.00

+ £12.50 Gift Aid

WELL-DONE, ANDY!!

Donation by Andrew Burling on 03/07/13

£20.00

+ £5.00 Gift Aid

Well done Andy and sorry for the late donation!

Donation by Anonymous on 03/07/13

£30.00

Well Done Al... great achievement

Donation by Alex Green on 03/07/13

£100.00

+ £25.00 Gift Aid

Better late than never - was just waiting for the evidence! a very worthy cause of which many will be grateful.

Donation by Fiona Mathers on 03/07/13

£50.00

+ £12.50 Gift Aid

Job well done!

Donation by Ohaj on 02/07/13

£50.00

+ £12.50 Gift Aid

From the VM team! x

Donation by Anonymous on 01/07/13

£60.00

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Well done guys, amazing effort!

Donation by Felicity Reed on 01/07/13

£40.00

+ £10.00 Gift Aid

Donation by Anonymous on 30/06/13

£200.00

+ £50.00 Gift Aid

Congratulations for this amazing effort. A very worthwhile cause.

Donation by L Lungley on 30/06/13

£10.00

+ £2.50 Gift Aid

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Good work boys! - with love from the carribean

Donation by The Noon Family on 28/06/13

£50.00

+ £12.50 Gift Aid

Donation by John & Charlotte Bateson on 28/06/13

£50.00

+ £12.50 Gift Aid

Donation by Matthew Freud on 28/06/13

£2,500.00

+ £625.00 Gift Aid

Donation by GRANT NAHORNIAK on 27/06/13

£75.00

+ £18.75 Gift Aid

Donation summary

  • * Online donations£96,267.80
  • Offline donations£15,555.00
  • Text donations£10.00
  • Total raised£111,832.80
  • Gift Aid£12,032.50

* Charities pay a small fee for our service. Find out how much it is and what we do for it.