Raising awareness of Cavernous Angioma

on 21 June 2006
on 21 June 2006
Thank you for taking the time to visit my fundraising page.
email- michaelgander@btinternet.com
UPDATE –12/12/06
It's now been almost 3 months since having the operation and I am happy to say that the Cavernous Angioma was completely removed.
I have lost the use of my right arm, but with regular physiotherapy and exercise, this should be a temporary problem, and already there are signs of recovery.
Mike
UPDATE –25/9/06
After all the waiting, the letter finally arrived, i am due to go in to hospital tomorrow morning at 10am, for various tests and monitoring, with surgery planned for Wednesday 27th (i assume !).
It's been a difficult 5 months, mentally. Coming to terms with a condition that i had never heard of but again, i feel fortunate that something can be done about it. i have learnt a lot about problems with the brain and there a lot of people far worse off than myself.
The support i have received has been a huge help, it means a great deal to me knowing that people are prepared to help in so many ways.
i am not so worried about the op (just mildly terrified !), as the surgeons carry out these operations daily, i am more concerned about the outcome and how i will be post op. But hopefully everyting will be ok eventually.
Besides i have a trek to do next year and a lot of fundraising events to set up before then.
Once back home i will be posting the address to a weblog, which i intend to keep updated.
Again, thanks for everyones support
Mike G
UPDATE –23/8/06
On the 21st Aug, a number of colleagues and I had our heads shaved in order to raise awareness of Cavernous Angiomas and raise money for the Brain and Spine Foundation. The cuts were generously provided by Nicky, Kerry and Amy of "Headmasters", Wellington.
From top left
Simon, Justin, Surrinder, Me, Piggy, Curly, Dave and Braggy
Thank you to everyone involved
UPDATE –29/7/06
First of all I’d like to say a very big thank you to all those that have donated online.
I have been overwhelmed with the response to this page and by the offers from people willing to help out in various ways.
Well, the time has come to announce that after having had my hair long for years, it will be shaved off around the 23rd of August (Actual date and time TBA)
I have arranged a head shaving and moustache growing event (I’m not really sure why I decided on the tache bit!!). A number of generous work colleagues have agreed to either grow a moustache until the end of August and/or have their heads shaved in order to raise awareness of Cavernous Angiomas.
I will replace the photo top left with a suitable pic to show off our new hair styles!!
Thanks again
INTRODUCTION -
I have recently been diagnosed with a vascular malformation of the brain, and I’m awaiting surgery.
“Vascular malformations of the brain are abnormal arrangements of the blood vessels in your head. There are several types, each affecting a different part of this network of arteries, capillaries and veins.”
Although a terrifying shock, I feel fortunate in that my Cavernous Angioma (CA) can be considered for surgery (Not without serious risk). In some cases, CA’s are considered inoperable due to their location within the brain.
I am also fortunate that, at the moment, this condition is not causing me too many problems. Others are not so lucky and have to live with various neurological deficiencies
For further information -
http://www.brainandspine.org.uk/
http://www.angiomaalliance.org.uk/
Before diagnosis I was unaware of the number of conditions that can affect the brain, and I’ve found the above 2 sites to be of great benefit both for education and reassurance
Rather than dwelling on risks involved with my operation, I am focusing on the more positive side of this experience.
I intend to raise awareness of CA’s and other brain conditions, along with raising awareness of the work carried out by these charities
Once fully recovered I intend to carry out a number of fundraising activities with a view to completing a 9 day trek walking on the Great Wall of China, late 2007.
I am even considering having my head shaved (why not raise money for charity, the nurses will be shaving it any way!!).
Please find the time to check out the links on this page, and learn about the work being carried out by these charities.
I will update this page as things progress so feel free to drop by at any time
Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Brain and Spine Foundation will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
So please sponsor me now!
Many thanks for your support.
Mike G
If you have any fundraising ideas, or want to get involved, please let me know
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