Millie Lola
Page creator: Chris Carney
Page closes: 21st Dec 2009
In memory of: Millie Lola
Fundraising Page Image
About our charity : Jennifer Trust for SMA Jennifer Trust for SMA
The Jennifer Trust for Spinal Muscular Atrophy works with children and adults who have spinal muscular atrophy, and their families. The charity offers a range of support services to help families cope with both the emotional and practical issues that the diagnosis brings, whilst funding research to find answers for tomorrow.
Charity Registration No 1106815
Fundraising target:  £10,000.00
Donations so far:  £ 7,706.00
SPONSOR US NOW
 
Share this page I want a page like this Set reminder
Our personal message:

As I write this in mid September 2008, what would have been Millie’s first birthday has been and gone, and it’s now 10 months since Millie was taken from us, aged just 4 months, 3 weeks, and 2 days, it seems like only yesterday. She leaves behind devastated parents and a five year old big sister, who has had to witness and endure things that no “little one” should have to. Whilst we are still grief stricken and struggling to come to terms with what has happened, we do feel truly honoured to have been blessed with Millie, placid and happy as she was, for the short but precious time we had her with us.
 
This last year has truly been, to quote an over-used but nonetheless true cliché, an emotional rollercoaster. In 5 short months, we went through the elation of the arrival of our gorgeous little girl, being overjoyed at her serene and happy demeanour; only to be told when she was 7 weeks old that she wouldn’t live past 6 months. The ensuing months became a bizarre combination of managing the daily practicalities of caring for our poorly little girl, trying to maintain as happy and “normal” home life for both girls, whilst trying to savour every moment that we had with her - not knowing how many more we would get. Millie’s quality of life, the struggle that we went through each day trying to provide the best for our poorly little girl was in no small part aided by the Jennifer trust, who were unswerving in their support of a family in crisis. The trust is a charity that supports families who have been blighted by Spinal Muscular Atrophy (SMA), a degenerative genetic disorder which is the number one genetic killer of infants in the UK today.

For me (Millie’s Daddy), since she passed, I have sought solace in the exhaustive training routine required to prepare for and complete both the Ironman France and the Etapé Du Tour, an undertaking that I hope provides a platform to raise awareness of SMA, and some funds for the trust. All expenses for both events were paid for out of pocket by us, so 100% of your donations go into the coffers of the trust.

To prepare for the events I trained 6 days a from the beginning of last November until the Etapé in July, workouts included one midweek run of between 15 and 20 miles after work, and a weekend ride starting at 50 miles, building up to 100 miles each week, as well as 5 lunchtime gym session and a couple of early morning swims.

So, onto the events, the Ironman is the longest event that the sport of triathlon has to throw at competitors. Starting with a 2.4 mile sea swim as a “warm up”, followed by a 112 mile bike ride, and in the case of the France event, straight up into the Alps, climbing 2000 Metres vertically over the length of the course. And if that isn’t enough, once the bike is over, a marathon awaits, at the start point of the marathon, I would have been going for in excess of 8 hours. I managed (just) to complete the France Ironman, I was gutted with the time (13:45), but now I've got over the disappointment, I've started to come to the opinion that that's largely irrelevant given the circumstance surrounding it for me, and that there will be other events to prove my prowess (haven't agreed that with Di yet though!). The heat on the Cote d’Azur was absolutely searing, 32 degrees in the shade - there was precious little of that on the course which provided piercing sun for the duration of the event. For a pasty brit who's been preparing over the winter here, it wasn't a welcoming environment.
 
Swim was pretty uneventful, took it steady, sat back for a change, and looked for a clear run rather than fighting my way through the 2000 other competitors all looking for the same piece of water, swim took 1:17.
 
Transition to the bike was steady, similarly the start of the bike, I then had my first nip of cramp at the bottom of the first big descent having just gone uphill for close on an hour. Took a mental note to take it easier, in order to get to the run fresh. I still continued to get further cramps for the remainder of the bike, which for me is unheard of, I didn't have to dismount, but was very aware of what was unfolding at this point. I can't remember the last time I got cramp on a bike, but then again, never rode the mountains in France in 30+ degree heat before!
 
That then led to a complete seizure of the legs in transition 2, 15 minutes to get going again, managed to run with cramp stops for about the first 10 miles of the marathon, and then the legs just completely locked up. I couldn't even walk without getting crippling cramps, threw up at this point. I was now at THE low point on the race, 16 miles to go, legs in bits, and clearly suffering heat exhaustion and dehydration, the vision was starting to get a bit blurred round the edges at this point. If it hadn't been for the thought of Millie, and all the messages of support, I'm not sure I would have got to the end. I did manage to hobble the last 16 miles, still cramping, but just about moving forward, so am glad of that at least.
 
A big well done to Toby, who, despite a distinct lack of bike hours put in a sterling effort, a good even pace, and a strong run, would certainly have caught me within a couple more miles at the pace we were going at!

I think I'll stick to less temperate climes for my future exploits, or convert my garage into a sauna, and set the bike trainer up in there, just no preparing for that sort of heat in the UK!

The Etapé is traditionally an opportunity for members of the public to ride the most difficult mountain stage of the worlds most famous bike race, the tour de France. This years stage followed one of the oldest and most revered tour routes through the Pyrenees, 100 miles in length, and climbs over 2 of the most brutal peaks in the Pyrenees, the col du Tourmalet, and the Hautacam. To put these climbs in perspective, think of the steepest hill in your area, these climbs will be at least that steep, in the case of the Hautacam for 9 miles, and the Tourmalet 11 miles, the Tourmalet also has the added “softener” of an additional shallower incline to get to the start, itself 8 Miles in length, that’s 17 miles uphill, no flat, no respite!

Toby and I started out from the Gite that we were staying in at 5:40 in relatively light clothing as the forecast was for light showers and 18 degrees. Mistake number one, in the event, it was prolonged (pretty much all day) light rain, and we were already soaked through to the skin by the time we'd ridden the 8 miles to the start, and then had a 50 minute stand, in the rain, shivering, before we made a move across the start line. Not a great start to the day.

The ride itself was great, really well organised, along some great rural roads and into small towns that were full of cheering spectators, just fantastic. As the rain kept coming all day, the roads never dried, so when it wasn't raining, we were getting covered in spray, which ensured that wet to the bone we stayed... the climb to the Tourmalet just seemed to go on forever, about 20 KM of it at around the 4% mark, and then the "real" climb for another 16KM at 7%, all in the rain, and up in the clouds past about 800M, really cold (about 2 or 3 degrees at the top), which was ok on the climb, but rather problematic on the decent. In order to keep warm, I was forced to pedal like the clappers on the descents, which made it rather interesting to say the least on the wet twisty mountain roads!

The climb up the Hautacam was gruelling, especially the steepest gradients of the day that came between 6 and 2 KM's from the end... The most uncomfortable part of the day however was being held at the top for 20 mins, in the freezing cold, still wet, to then descend back down through the mist to the bottom of the Hautacam which was another 30 minutes of misery, I was probably the coldest I've ever been. Don't know how I slowed down on some corners, my hands weren’t responding any more. I stopped at the first cafe I came to at the bottom, and consumed vast quantities of hot chocolate, chips and burgers to try and warm up. A guy later commented when I'd stopped shivering (literally about an hour later) that he didn't want to ask if I was OK, as he thought I might have a medical condition! :-)

I completing the Etapé along with my certifiable friends Pat Healey, Paul Freeman and Toby Pearson, and the Ironman with Toby (doubly certifiable?), all of whom completed the challenges before them, and have additionally provided both invaluable emotional support through these tough times, along with debates on everything from fuelling strategies during a race to what is the best clothing to wear in these most extreme of circumstances.

Additionally, we've has some fantastic support from friends and people who have only heard our story in the Manchester 10K run this year through a corporate team entered by Branton Bridge solicitors. Special thanks to Paula Bridge and Kate Branton for nominating The Jennifer Trust as the beneficiary of the group entry. The race is the North’s premier 10K run following a route from the city centre around the Old Trafford football ground and back again. A couple of notable mentions in the field of runners to Julia Cocking who ran an excellent 70 mins for her first 10K, keep up the good work Ju, and to Dave Bridge who despite no training, significant knee injuries and chronic gout - did 54 mins, although last 3Ks were later described as 'difficult'. Andy Bull was quoted as saying that the event was a net loss in terms of calories after retiring to the Lowry Hotel post race to test the limits of their Peroni stock.

Finally to Toby (trebly certifiable?) who ran a fantastic 3:06 in the Paris marathon in March, despite suffering at the hands of some French Pate the night before, great effort mate. 

Chris

Page 1 of 2     Latest  << | < | > | >>  Earliest
Display Name Date Amount Tax Bonus  Comment
Priya Neti 26/09/2008 £50.00 £14.10 Well done Chris.  
Richard Szurgot 26/09/2008 £50.00 £14.10 Well done Chris! 
Chris 15/09/2008 £50.00 n/a  
Chris Dwyer + family 13/09/2008 £20.00 £5.64 Well done Chris! a terrific achievement. 
Julie,Chris,Spencer 27/08/2008 £50.00 £14.10 Well done chris - bottle of red on its way! 
Craig Stephenson 21/08/2008 £50.00 £14.10 Well done Chris!! You're clearly all mad (Toby, Pat, Paul) :-) 
Steve Billingham 20/08/2008 £100.00 £28.21 Well done mate 
Chris 06/08/2008 £170.00 £47.95  
Mum and Sheelagh 06/08/2008 £446.00 £125.79  
branton bridge solicitors 05/08/2008 £1,500.00 n/a sorry its taken so long to gather in , but hope it helps ..it was a pleasure to raise ! regards paula bridge 
Andy, Julia & friends 31/07/2008 £285.00 £80.38 HUGE thanks to all that sponsored 10K Manchester run! Total cash/online reaches £440 thanks Congrats Chris on your achievements. Andy Julia & friends 
Hannah and Pete 23/07/2008 £100.00 £28.21 Incredible Chris ! Best of luck. 
Andy & Nicky Warren 21/07/2008 £50.00 £14.10 What an impressive response to a tragic event 
Stella Bryan 18/07/2008 £25.00 £7.05 A very impressive feat for a very worthy cause 
Lisa Mason 15/07/2008 £20.00 £5.64 Well done! 
Pauline (Pauls Neighbor) 15/07/2008 £10.00 n/a  
Steve Donovan 12/07/2008 £500.00 n/a You're an Iron Dad 
P Bull and Family 12/07/2008 £20.00 £5.64 Hope you got round in one piece. 
Olaf 08/07/2008 £50.00 £14.10 apologies for being late, hope you made it up & down the Tourmalet 
Jill & Jeremy 08/07/2008 £10.00 £2.82 Thanks for your letter Diane. Best of luck Chris. Hope the event goes well for you. 
Alan Gill & Nathan Baily LND 03/07/2008 £25.00 £7.05 Donation from your letter, good luck for all your fundraising 
The Linscers 02/07/2008 £50.00 £14.10 Well done ! we're sorry it has taken so long to post this donation on here -can't believe you did the Iron man quicker than it took us to use the pc ! 
sonia,stuart & family 27/06/2008 £10.00 n/a our thoughts and love r with u all on what would have been millie's 1st birthday (26/6/08) xxxx 
Mark Lewis 27/06/2008 £25.00 £7.05 Hope it went well 
Jill & Michael Poultney 26/06/2008 £50.00 £14.10 Read the letter and decided to donate. All the best for the challenge a noble response to the loss. 
Jo & Paul 25/06/2008 £50.00 £14.10 Love to all of you 
Ruth and Andrew Hindmarch 24/06/2008 £50.00 £14.10 Wow! Wishing you lots of luck and our thoughts will be with you! 
Gareth & Izabela Morris 24/06/2008 £30.00 £8.46 Fantastic achievement  
Saqib Allana 24/06/2008 £20.00 £5.64 All the Best and Good Luck 
Mick & Tina 22/06/2008 £50.00 £14.10 Fantastic achievement, we will never forget why you are enduring the daddy of all triathlons! All the best 
Fi Brown 22/06/2008 £10.00 £2.82 All the very best to you for the races and the very best of luck for the cause. Kind regards, Family of Dominic Brown LND yr 3 
Robert & Mary 22/06/2008 £30.00 £8.46 Good luck 
BJBABB LTD 21/06/2008 £250.00 £70.51 Wonderful response to a tragic event. Brian Babb 
Wendy Knight & Family 20/06/2008 £50.00 £14.10 Good Luck on Sunday. 
Rachel and Chris 20/06/2008 £250.00 n/a Chris, I'm thinking of you all and wishing you all the success in the tri. Go mate 
All at Allison International 20/06/2008 £250.00 n/a Chris, we will be thinking of you and wish you a very successful challenge! 
Katharine and Marcus 19/06/2008 £30.00 n/a Good luck on Sunday and with your fund raising. We are thinking of you XX 
McCheynes LND 18/06/2008 £20.00 £5.64 Good luck Sunday! 
barbie kemp 18/06/2008 £15.00 £4.23 Best of luck. You sure deserve it. 
McAlister Family 18/06/2008 £30.00 £8.46 With all our love and best wishes. 
Rachel and Richie 18/06/2008 £50.00 £14.10  
The Collingwoods 18/06/2008 £50.00 £14.10 Good luck with your incredible challenge - we will be thinking of you all 
Steven Morgan 18/06/2008 £20.00 £5.64 I thought people who partook in the Ironman were robots, therefore you must be a robot. So, 01101! 
Johnny Freear 18/06/2008 £20.00 £5.64 Good luck - both with the events and raising the money. Amazing effort on both counts! 
The Leeves family 18/06/2008 £30.00 n/a The very best of luck  
Jackie, Marcus & Rebecca Brooman LND 17/06/2008 £20.00 £5.64 Good Luck Chris we'll be thinking of you. What a challenge. 
Kimbers (Rainbows&Caterpillars) 17/06/2008 £20.00 n/a God's speed! 
Lewis, Erica and Ruben 17/06/2008 £50.00 £14.10 Best of luck and be sure to drink lots of IrnBru beforehand! 
Moore family LND 16/06/2008 £20.00 £5.64 Certifiable indeed - and inspiring for making such a tribute to your lovely little girls. 
Maidment Family 16/06/2008 £30.00 n/a What a challenge! All the very best! 
Ian & Tasha 16/06/2008 £100.00 £28.21  
Olden family LND senior school 16/06/2008 £20.00 £5.64 The best of Luck in your challenge 
Ian & Charlene (Daughter in Caterpillars) 16/06/2008 £75.00 £21.15 Best of luck 
Mel Pattison (mum Caterpillars/Rainbows) 16/06/2008 £20.00 £5.64 Best of luck in your challenge. 
Nick Eades 16/06/2008 £30.00 £8.46 Good luck on the 21st Chris 
Rachel, Lindsay, Callum & Wills 16/06/2008 £50.00 £14.10 With best wishes 
Georgina Richards - Rainbows Mum Notre Dame 16/06/2008 £20.00 n/a Wishing you a safe Journey & Best wishes to the rest of the Family 
lisa harrison 16/06/2008 £10.00 £2.82 good luck 
I2R 16/06/2008 £50.00 £14.10 good luck - and stay on the bike! 
David Murray 16/06/2008 £50.00 £14.10 good luck mate 
Gareth Clay 15/06/2008 £50.00 £14.10 Go for it, Chris - all the best 
Kunle 13/06/2008 £50.00 £14.10 ... all the best chris 
Kate Carlton-Reditt 13/06/2008 £30.00 £8.46 Best of luck and keep up the good work - I can't think of a better cause, Esme, Freia. Jubu & Kate 
Lawrence Pendred 13/06/2008 £25.00 £7.05 Have a wheely good run. 
pete windle 13/06/2008 £50.00 £14.10 good luck 
Holden 13/06/2008 £100.00 £28.21 Stumpy here cant imagine how hard all of this is - awesome what you are doing and good luck. 
Emma Macpherson 13/06/2008 £10.00 £2.82 Good Luck - From my Angel Georgia  
urmel 10/06/2008 £50.00 £14.10 best of luck 
Neil Thraves 10/06/2008 £50.00 £14.10 Don't you need yellow shorts or something? 
Denis 10/06/2008 £50.00 £14.10 Best of Luck Guys! 
Alan Clisby 10/06/2008 £20.00 £5.64 Best of Luck 
Crissi 10/06/2008 £20.00 £5.64 I hope you do a better job cycling than my boyfriend :-) 
Dave Blair 10/06/2008 £50.00 £14.10 Nutter 
Choufflard 23/05/2008 £10.00 £2.82 Best of luck 
Susan Walmsley 22/05/2008 £15.00 £4.23  
Tony & Sarah 20/05/2008 £20.00 £5.64 Good luck to all off you.  
Gas and Neat 18/05/2008 £50.00 £14.10 Exhausted just reading about the events! Sorry for the tardiness in pledging to Millie's fund.  
Marek 18/05/2008 £50.00 £14.10 Good luck with the Iron man Chris 
Ben Waite 15/05/2008 £5.00 £1.41 Good luck with the run Andy. Best wishes to the charity. 
Claire and Andrew Gowen 14/05/2008 £20.00 £5.64 Your bravery and determination is very humbling! Also, good luck to Andy and Julia for the Manchester 10K! 
jason 12/05/2008 £10.00 £2.82 Great effort 
Deepak Patel 07/05/2008 £10.00 £2.82 All the best. 
Toby 02/05/2008 £585.00 £165.00 A big thankyou to everyone for the support in the Paris Marathon. xxx 
Paul Hogan 23/04/2008 £50.00 £14.10 This is for Millie from Brontë xxx 
Ali Neild 17/04/2008 £10.00 £2.82 Good luck! 
Neil and Jools 17/04/2008 £40.00 £11.28 Go go go ... Andy and Ju, good luck in the Manchester Run 
Jen Burns 11/04/2008 £10.00 £2.82 Love to you and your family. Good luck in the event! 
Neil Marshall 09/04/2008 £5.00 £1.41 For the Manchester 10K runners 
Deborah and Geir 09/04/2008 £30.00 n/a Good luck with your events! 
Helen 08/04/2008 £5.00 £1.41 Best of British in your feat 
Robert & Mary 05/04/2008 £30.00 £8.46 Best of luck in Paris 
Helen Jack 04/04/2008 £10.00 £2.82 Get Running Paula! Good Luck! 
Lucy Steel 03/04/2008 £50.00 £14.10 The very best of luck to you all! 
mitch and kerri 02/04/2008 £50.00 n/a go for it boys , respect as they say in the UK.  
Pip 01/04/2008 £50.00 £14.10 Go for it Toby (and Chris probably).  
Mathias and Emily 26/03/2008 £50.00 £14.10 So sorry to hear about this.  
Gretchen 26/03/2008 £50.00 £14.10 Very impressive, good luck. 
Alli, Alex, Hugo and Freddie Hawes 24/02/2008 £20.00 £5.64 Millie will always be in our thoughts xx 
Richard Webb 21/02/2008 £50.00 £14.10 Finally made it! Lots of Love 
Peter, Katya, Victoria and Edward 14/02/2008 £100.00 £28.21 With love - sorry its so late. 
  Page 1 of 2     Latest  << | < | > | >>  Earliest
Verisign secure site-- click to verify SPONSOR US NOW
*Total donated online: £7,706.00
Amount raised offline: £0.00
Gift Aid plus supplement: £1,389.39
Page tags 
The page owner has yet to add tags to this page

If you are the page owner, why not get tagging right now?
  rss logo  | more about RSS  

  

 add to Del.icio.us   

* See what happens to your donation.