Raised: 7%
Target: £50,000.00
Raised so far: £3,584.58
Donate now

My story

 

Would you like to see me smile?

So would my Mummy and Daddy!

Hi my name is Noah and I have Moebius Syndrome. Among other things, this condition means I do not have any nerve or muscle function in my face and therefore cannot smile. If I could I would be smiling all the time since I am such a happy baby and my  mummy is very funny!

To date we do not really know why I have this condition and as it is so rare doctors do not know enough about it to tell us how or why it has happened. This is why my mummy and daddy (and some other very special people who care about me) have begun the Mobilise for Moebius campaign to raise enough money for the Moebius Research Trust to conduct a genetic research programme to find out if we can locate a cause and perhaps oneday unlock a cure.

In order to carry out the research we need to raise £250,000 and have 100 Moebius candidates. However, this condition (being so rare) means it is difficult to find enough people affected by by the condition to either take part or to help raise the money.

This is why we need your help,  by making a contribution to our cause you will be raising the awareness of this very rare condition and hopefully getting one step closer to putting a very big smile on my face.

From the sale of 6000 chocolate bars..more to come!! With love from your friends and family in Oz. xoxoxox Donation by Friends and family from School days.. 12/06/09  

£1,000.00

Thanks for the quiz guys! xx Donation by jumper jamboree 22/12/08  

£55.00 + £15.51 Gift Aid

we did a little walk for you because we love you to bits Donation by nanny&grandad 20/10/08  

£200.00

Wind the bobbin up, pull pull, clap clap clap!!!! Donation by Jen and Tom 19/09/08  

£20.00 + £5.64 Gift Aid

we sold lots of noahjitos! Donation by Gippo Hill BBQ 26/08/08  

£155.70

Bravo Paz, top man Donation by Filo 26/08/08  

£20.00 + £5.64 Gift Aid

Best Wishes from us all Donation by Valerie, Brendan, Jamie and Family 20/08/08  

£30.00

Well done Paz, Dan and Dave for your amazing efforts at the triathlon. As promised here is that little bit more as a way of saying thankyou! Donation by Noah's daddy 19/08/08  

£150.00 + £42.31 Gift Aid

For little Noah Donation by Mac and Car Car Mckenzie 18/08/08  

£10.00

Soz didn't get round to sponzoring you till you were back at the nezt! Keep up the good work! Donation by Lucy Swanston (Mrs Nut!) 18/08/08  

£30.00 + £8.46 Gift Aid

Well done mate! Sorry I didn't get round to sponsoring you before the event, but hope this helps towards your target! I knew you would Kickz some ass! Donation by Gary Broadhurst 15/08/08  

£25.00 + £7.05 Gift Aid

Good luck with the fundraising Donation by Hayley Davies, Russ & Rhys 10/08/08  

£10.00 + £2.82 Gift Aid

Good luck mate Donation by JP Considine 08/08/08  

£10.00

Good Luck Gaffer! Donation by Jeni 08/08/08  

£20.00 + £5.64 Gift Aid

Sorry to hear about the injury, hope you enjoy the big day! Donation by Sarah Mawle 07/08/08  

£10.00 + £2.82 Gift Aid

Good luck Paz ! All the best. Donation by Anton Sambrook 07/08/08  

£10.00 + £2.82 Gift Aid

Good luck!!! Donation by Charissa and Nelson 07/08/08  

£20.00 + £5.64 Gift Aid

Every little bit counts Donation by Erin aka Ezmae McNellie 07/08/08  

£15.00

Donation by Cash Donations 06/08/08  

£25.00

Goodluck sweet laddie Donation by Bob & Ann Smith 06/08/08  

£10.00 + £2.82 Gift Aid

From your friends in finance. Good Luck! Donation by Alison & Effie 06/08/08  

£10.00 + £2.82 Gift Aid

Good luck Gordon Donation by Brendan Cropley 06/08/08  

£20.00 + £5.64 Gift Aid

Best of luck Andy! Donation by Fran Trisconi 06/08/08  

£15.00 + £4.23 Gift Aid

I didn't know parrotts could swim. What a worthwhile cause, good luck with your future fundraising too Donation by Abi Goddard 06/08/08  

£15.00 + £4.23 Gift Aid

All the best Andy, if anyone can complete this it's you, love to Lil Noah too! Donation by Schiavo Family 05/08/08  

£25.00 + £7.05 Gift Aid

Good Luck AP! Donation by Kate Halliday 05/08/08  

£10.00 + £2.82 Gift Aid

Good work Andrew. I'll see you for a head-to-head in 2009 Donation by Matty G 05/08/08  

£10.00 + £2.82 Gift Aid

Good luck! Donation by Bob B 05/08/08  

£15.00 + £4.23 Gift Aid

For Noah with love xx Donation by Victoria Burnett 05/08/08  

£10.00 + £2.82 Gift Aid

For little Noah XXX Donation by Natalia Joannou 05/08/08  

£10.00 + £2.82 Gift Aid
Donate now
 
* Total raised online: £3,584.58
  Offline donations: £0.00
  Gift Aid plus supplement: £388.91

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