This is the JustGiving page of www.myasthenickids.org the family support network of the MGA National Children's Branch, supporting children, young people and families affected by Congenital Myasthenic Syndrome (CMS), Myasthenia Gravis (MG) or Lambert-Eaton Myasthenic Syndrome (LEMS).
The support network and branch were established in 2009 by a group of parents keen to find, and connect with, others affected by these extremely rare conditions. As families are spread accross the country an important focus for our fundraising is the ability to hold weekends and events where families and children can meet each other, share their experiences of these conditions, learn from each other and support each other.
We are now fundraising for the 2010 Children's Weekend.
The first such meeting was held in August 2009 - details of which can be found here on our website: http://www.myasthenickids.org/Ourchildren/ChildrensWeekend2009.aspx
Thank you for your interest and support, it is greatly appreciated.
