Netherton Syndrome Research Group

matt jeffries is raising money for Ichthyosis Support Group
“matt jeffries's fundraising”

on 20 June 2010

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Ichthyosis Support GroupVerified by JustGiving
RCN 1142457
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.

Story

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

This Just Giving page has been set up to help with research into Nethertons Syndrome. Danny, Julie and Little Jack would like to thank everyone who donates to this page. New Events will be added throughout the year so keep an eye on our Website page  www.nethertonsyndrome.com

Thanks again and hopefully see you all soon

 

 

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Donation summary

Total
£3,491.38
+ £534.38 Gift Aid
Online
£2,233.38
Offline
£1,258.00

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