Thank you for visiting our fundraising page.
In North East Hampshire a team of volunteers raises funds by organising events and inviting sponsorship. The funds we raise locally go towards supporting those living with Neurofibromatosis in Hampshire and surrounding areas. In this area, the work of the NF Specialist Advisor is not funded by the NHS but has to be found by us. Some of you may know that I became involved because, sadly, my daughter Sarah died in 1998 as a result of complications with NF. She was only 24 and there was no Specialist Advisor available for her then. This is why it is my aim to keep this posistion open so that those with NF receive all the help and care that they need. Some of the other local volunteers also have NF in their family and they share my aim.
PLEASE HELP US TO CONTINUE PROVIDING THIS SERVICE BY DONATING NOW!
Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a donation: the NFA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
Simon Callow, Patron of the NFA, says
“The NFA addresses one of the most distressing of all physical conditions, one which desperately needs more research, but also much stronger backup for sufferers and their families. It is a fantastic organisation which I have supported in every way I can for over 20 years.”
THIS YEAR'S EVENTS
Our first 2009 event - in February - was a fabulous Jazz evening at the Concorde Club, Eastleigh, featuring all the A listed artistes who made our 2007 Jazz Party & Picnic so successful. (We are starting to organise an evening at the Concorde on 24 February 2010 so watch this space!) The next big event was the Odiham Jazz Weekend 2009 which, for the first time, we organised jointly with another local charity. Visit www.odihamjazz.org.uk for full details. In between times were were at 'Blues & Booze in the Bury' in Odiham on 13 June. A great day out. For us, one of the highlights was the balloon race as the furthest recorded balloon reached the Dutch/German border! See photo above of the prize winners about to have their meal kindly donated by Blubeckers Mill house.
Neurofibromatosis is a genetic disorder which can be passed on or start spontaneously. It can cause disfigurement, disability, disadvantage and premature death. Each year more than 400 children are born with Neurofibromatosis and it could happen in your family. Please help and donate NOW!
Many thanks for your kindness.
The amount raised off-line shown below includes donations made, including gift aid, and funds raised from the beginning of our financial year 2008.
