My story

Hi, my name is Ollie.  I am nearly 2 ½ years old.  I was born 10 weeks early which was a big shock to my family.  I spent the first 7 weeks of my life in special care.  Just before my Mum, Dad and big brother Sam brought me home from hospital, they told my family that I had a condition called PVL (periventricular leucomalacia).  As I have grown and developed I have been diagnosed with spastic diplegic cerebral palsy – this means I can’t walk like my friends and big brother.  

My Mum and Dad have looked around and tried to find lots of things to help me.  They filmed me crawling and moving around and sent the film to Dr Park, a surgeon at St Louis Children’s Hospital in America.  Dr Park specialises in helping children who have the same problem I do.  He has invented an operation called SDR (Selective Dorsal Rhizotomy) He thinks I am an excellent candidate and that if I have the operation my mobility will improve and there is a good chance I will be able to walk.  The problem is in order to have the operation my family need to find £60,000!  We are on Dr Park’s waiting list for summer 2013. 

My Mum and Dad say I am such a star!  I work really hard on my physio everyday.  I use a standing frame, wear splints and have a special stretching routine my Mum and Dad help me with at bedtime.  I am just beginning to learn how to use a kaye walker.

I am a really happy little boy and am so determined to get around.  When I am chasing after Sam and crawling as fast as I can, I often shout “I’m running!”.  I have already shown my family that I have courage, determination, a sense of humour and a willingness to work hard on my physio and succeed.

I have fantastic Grandparents and family friends who really want to see me walk.  Please help me achieve my dream to run around with my big brother.

Love Ollie XXX

 

My gallery 9

My updates 21

Now getting a little worried about the 10 peaks walk as it is comming up fast

23/04/13 15:27

Thank you to all who came along to the ball on friday we had raised over £17,000

23/04/13 15:26

Thank you to Jas for running the Bansel curry night which made £266!

28/03/13 21:12

Lots of events have taken place these last couple of weeks, so a big thank you to all at Poppies, every one who helped make the Dorset fashion show such a success and Nan's coffee morning.

28/03/13 21:07

An enourmous thank you to these people: Romy Barratt from school who raised £5.20 selling bookmarks and quiz questions. The Russell family, Rosie, James and Andrew Forsyth. We really do appreciate all your help and support.

22/03/13 21:48

My Team

Team photo
Team Ollie

My company

My charity

Tree of Hope

Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Tree of Hope offers hope to the families of sick children in the UK who need specialist medical surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives. England & Wales 1043092 Scotland SCO4261 http://www.treeofhope.org.uk

Donations 273

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Well done Chris Watson...and good luck Ollie.

Donation by Stephen Edwards on 22/05/13

£10.00

+ £2.50 Gift Aid

Many thanks to Tony Hale for an amazing tour of St Paul's Cathedral last week - an auction prize won by our son-in-law Alan Bannatyne at Ollie's ball. We wish Ollie & his family all the best.

Donation by Anonymous on 22/05/13

£60.00

+ £15.00 Gift Aid

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Well done to all who braved the weather (hailstones and all) on the 10 peak challenge!

Donation by Hazel McCullagh on 22/05/13

£20.00

+ £5.00 Gift Aid

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Ollie, what a joy it will be to see you marching round the room at your music lesson! Best wishes to you & all your family over the coming weeks. x

Donation by The Louw Girls on 20/05/13

£20.00

+ £5.00 Gift Aid

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Lots of love from Rosie, who loves Music Matters too xxx

Donation by Kate Dunbar on 20/05/13

£10.00

+ £2.50 Gift Aid

You dance your socks off Sara Tossell good luck x x

Donation by Anonymous on 19/05/13

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 18/05/13

£10.00

+ £2.50 Gift Aid

Donation by Colin Bracewell on 18/05/13

£10.00

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Best wishes to all of you x

Donation by Jane & Arthur Lees on 16/05/13

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With very best wishes.

Donation by Anna Sable on 15/05/13

£10.00

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Best of luck Ollie from 2nd Wooburn Guides, who did a 3 legged hike to raise our donation

Donation by Rosie Walklin on 15/05/13

£35.00

+ £8.75 Gift Aid

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Well done to Daniel and the whole team on undertaking the 1o peak challenge at the weekend.

Donation by Catriona Hughes on 15/05/13

£10.00

+ £2.50 Gift Aid

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Donation by Michael and Yvonne Edmonds on 13/05/13

£100.00

+ £25.00 Gift Aid

Donation by David Capes on 12/05/13

£25.00

Donation by Roberta Hall on 12/05/13

£50.00

+ £12.50 Gift Aid

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Hope the feet and legs are not too sore, love Roger and Doris XX

Donation by Roger Wise on 12/05/13

£100.00

+ £25.00 Gift Aid

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Proud of you Elin, do the best you can! Hope it all goes well! Xxx xxx xxx

Donation by James Noble on 11/05/13

£20.00

+ £5.00 Gift Aid

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With very best wishes.

Donation by Magnus & Alison (via Music Matters) on 10/05/13

£20.00

+ £5.00 Gift Aid

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Donation by Sarah Trenfield on 10/05/13

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Good luck Chris W. Hope the weather is kind to you. It is a real challenge so hope the training delivers.

Donation by Alec Campbell on 10/05/13

£20.00

+ £5.00 Gift Aid

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Good luck Chris and team.

Donation by Jerry Thompson on 10/05/13

£50.00

+ £12.50 Gift Aid

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To Daniel and the Team we wish you the best of luck in your endeavours for OLLIE. We will be thinking of you all the way.

Donation by Jayne and Barry Lawton on 10/05/13

£150.00

+ £37.50 Gift Aid

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To Daniel and Rebecca - Please bring Giles back alive :) Wishing you all a safe and not too horrendous climb tomorrow! Good Luck.

Donation by Helen Kinrade on 10/05/13

£20.00

+ £5.00 Gift Aid

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Good Luck Chris

Donation by michael brown on 09/05/13

£10.00

+ £2.50 Gift Aid

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Good luck to Chris

Donation by Karen Robertson on 09/05/13

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£18,994.74
  • Offline donations£27,200.26
  • Text donations£10.00
  • Total raised£46,205.00
  • Gift Aid£4,048.52

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