Story

Hi, my name is Ollie.  I am nearly 2 ½ years old.  I was born 10 weeks early which was a big shock to my family.  I spent the first 7 weeks of my life in special care.  Just before my Mum, Dad and big brother Sam brought me home from hospital, they told my family that I had a condition called PVL (periventricular leucomalacia).  As I have grown and developed I have been diagnosed with spastic diplegic cerebral palsy – this means I can’t walk like my friends and big brother.  

My Mum and Dad have looked around and tried to find lots of things to help me.  They filmed me crawling and moving around and sent the film to Dr Park, a surgeon at St Louis Children’s Hospital in America.  Dr Park specialises in helping children who have the same problem I do.  He has invented an operation called SDR (Selective Dorsal Rhizotomy) He thinks I am an excellent candidate and that if I have the operation my mobility will improve and there is a good chance I will be able to walk.  The problem is in order to have the operation my family need to find £60,000!  We are on Dr Park’s waiting list for summer 2013. 

My Mum and Dad say I am such a star!  I work really hard on my physio everyday.  I use a standing frame, wear splints and have a special stretching routine my Mum and Dad help me with at bedtime.  I am just beginning to learn how to use a kaye walker.

I am a really happy little boy and am so determined to get around.  When I am chasing after Sam and crawling as fast as I can, I often shout “I’m running!”.  I have already shown my family that I have courage, determination, a sense of humour and a willingness to work hard on my physio and succeed.

I have fantastic Grandparents and family friends who really want to see me walk.  Please help me achieve my dream to run around with my big brother.

Love Ollie XXX

 

Updates 21

Now getting a little worried about the 10 peaks walk as it is comming up fast

23/04/13 15:27

Thank you to all who came along to the ball on friday we had raised over £17,000

23/04/13 15:26

Thank you to Jas for running the Bansel curry night which made £266!

28/03/13 21:12

Lots of events have taken place these last couple of weeks, so a big thank you to all at Poppies, every one who helped make the Dorset fashion show such a success and Nan's coffee morning.

28/03/13 21:07

An enourmous thank you to these people: Romy Barratt from school who raised £5.20 selling bookmarks and quiz questions. The Russell family, Rosie, James and Andrew Forsyth. We really do appreciate all your help and support.

22/03/13 21:48

Raising money for

Tree of Hope

Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Tree of Hope offers hope to the families of sick children in the UK who need specialist medical surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives. England & Wales 1043092 Scotland SCO4261 http://www.treeofhope.org.uk

Donations 322

So pleased to see that Ollie is progressing with his walking.

Donation by Jo & Phil Roberts on 12/09/13

£150.00

+ £37.50 Gift Aid

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Donation by Margery Hodson on 07/08/13

£50.00

+ £12.50 Gift Aid

Good Luck Ollie, such a strong character for a young boy

Donation by Spartan Rangers Golf Society on 07/08/13

£150.00

+ £37.50 Gift Aid

Sorry we are a bit late - best of luck to Ollie.

Donation by The Stanton Family and Stoker on 31/07/13

£20.00

+ £5.00 Gift Aid

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50 people came to tea in the garden! It was a lovely afternoon and we generated lots of love for Ollie xxx Pennie

Donation by Pennie Hawkes-Payne on 31/07/13

£530.00

+ £132.50 Gift Aid

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Shakespeare roofing & builders sponsored Ollie's Riders. They wish Ollie well and he gets his dream to walk unaided .

Donation by Karen Seymour on 29/07/13

£50.00

+ £12.50 Gift Aid

Sending lots of love to Ollie. Sorry it's a little late!

Donation by Friends of Aarti on 24/07/13

£20.00

+ £5.00 Gift Aid

A late donation for Robert Hinson's walk. Good luck Ollie!

Donation by Di on 14/07/13

£50.00

+ £12.50 Gift Aid

Family and friends at our Steam in the Garden Day are pleased to support Ollie and wish him all the best.

Donation by Andy and Lorna Hopper on 14/07/13

£440.00

+ £110.00 Gift Aid

Hope all goes well

Donation by Nigel Hodson on 05/07/13

£50.00

+ £12.50 Gift Aid

Sorry we couldn't make the bike ride or your drinks evening, Paul and Karen but here's a small donation anyway from me and Angela.

Donation by Simon GRIFFITH on 04/07/13

£10.00

+ £2.50 Gift Aid

Thank you Raj and Moona for sponsoring such a worthy cause Jo

Donation by Anonymous on 02/07/13

£30.00

+ £7.50 Gift Aid

Donation by Constance Roberts on 29/06/13

£100.00

+ £25.00 Gift Aid

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With very best wishes .

Donation by Steve, Sam and Josh Holley on 26/06/13

£20.00

+ £5.00 Gift Aid

Donation by E Evans on 26/06/13

Heard about your cause from Jo Drage at the gym! Hope you reach your target soon and hope this little bit helps!

Donation by NIKKI SMART on 24/06/13

£5.00

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Well done Paul and co on your bike riding. Its a great cause.

Donation by The Burkes Close Browns on 23/06/13

£50.00

+ £12.50 Gift Aid

Donation by Steve Crawshaw on 21/06/13

£10.00

+ £2.50 Gift Aid

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Good luck over the weekend Mike on your epic kayak adventure! Well done for doing it.

Donation by Cathryn Barnett on 20/06/13

£20.00

+ £5.00 Gift Aid

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Best of luck for the trip!

Donation by Anonymous on 19/06/13

£500.00

Donation by Anonymous on 19/06/13

£20.00

+ £5.00 Gift Aid

Sponsor money for Jazzercise event on 1st June It was great to see Ollie and his family at the event. Good luck little man. We will be thinking of you and wishing you all the best. xxx

Donation by Anonymous on 18/06/13

£75.00

+ £18.75 Gift Aid

Good luck to Jo with the bike ride, wishing you sucess in raising the remaining funds and most of all wishing Ollie well with the op.

Donation by C Robin on 18/06/13

£25.00

+ £6.25 Gift Aid

Donation by Anonymous on 16/06/13

£25.00

+ £6.25 Gift Aid

To Jo and friends, Good luck in your bike ride, raising the rest of the money and the operation. x

Donation by The Patel Family on 16/06/13

£100.00

+ £25.00 Gift Aid

Donation summary

  • * Online donations£25,075.29
  • Offline donations£27,200.26
  • Text donations£10.00
  • Total raised£52,285.55
  • Gift Aid£5,147.94

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