Raised so far: £198,653.98
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My story

 

Nicky West’s dream is being followed by family, friends and those she inspired in her life; through Nicky’s Whisper, her voice is still heard.

In life, Nicky worked hard to tell people about Cystic Fibrosis and to raise money to fund gene therapy.  Nicky knew gene therapy would be too late for her, but wanted to help those with CF younger than her and save them the pain and troubles she had to endure.

Through Nicky’s determination and the wonderful support people have shown to Nicky’s Whisper, over £200,000 has been raised in Nicky’s name. 

The Cystic Fibrosis Trust is now at a stage that Nicky would have longed to see; it is embarking on clinical trials for gene therapy for Cystic Fibrosis. The first pilot study begins in February 2009 will involve 27 young adults with CF. They will each have one dose of the gene therapy product - the trial is estimated to finish in the summer of 2009.

Once the results have been analysed and assuming that there have been no adverse effects the Cytic Fibrosis Trust will be embarking on a Phase II clinical trial (involving 100 patients) in 2010. It is estimated that the results should be known in 2012.

This work is complex and expensive and Nicky was passionate about raising funds for it - right until the day she died. She would have been so excited to know that she can still inspire so many people to raise money for a cause that meant so much to her.

This money and her amazing efforts in the last few months of her life have made a huge difference. Please continue to support Nicky's Whisper.

Nicky’s Whisper

Remember me as someone who laughed
Who lived in the present and not in the past
When you think of illness, don’t feel sad
Just remember the good that came from the bad

Remember my voice and songs that I sang
And speeches I gave to help people understand
I lived life to the full and had no regrets
All I ask now is one last request

Follow my dream and spread the word
And through Nicky’s whisper I’ll still be heard

Nicky West 1974-2004

I met Sarah Guthrie from the CF Trust last night and was reminded of this page. I never knew her but Nicky was an incredible and inspiring woman Donation by Liz Smith 04/02/10  

To Scarlett, with love Sam, Rupert, Nicholas and Olvier xx Thank you x Donation by Samantha West 27/01/10  

Happy Birthday Scarlett. We are very glad to give to this important cause. XX Donation by Nicola Barnes 20/01/10  

£15.00 + £4.23 Gift Aid

Dear Scarlett Happy 5th Birthday. All our love Mummy, Daddy and Eddie Donation by Elaine Fraser 17/01/10  

Happy Birthday Scarlett! Thank you for a lovely party - I really enjoyed it. With love from Sachin Donation by Gina Desai 16/01/10  

£20.00 + £5.64 Gift Aid

Happy 5th Birthday, Scarlett. Love Natalya x Donation by Elizabeth Keller 16/01/10  

£15.00 + £4.23 Gift Aid

Happy 5th Birthday Scarlett. Donation by Alice 15/01/10  

£10.00 + £2.82 Gift Aid

Happy Birthday Scarlett Donation by Millie Britain 15/01/10  

Happy birthday Scarlett Donation by Simone and Anika Timchur 14/01/10  

£20.00

Happy 5th Birthday Scarlett. Love from Oliver.B x x Donation by Clare Brattle 13/01/10  

£15.00 + £4.23 Gift Aid

Happy Birthday Scarlett love from Gary, Sasha, Oscar and Jemima xx Donation by Sasha Fry 13/01/10  

£20.00 + £5.64 Gift Aid

Donation by Jane Clapp 12/01/10  

£20.00 + £5.64 Gift Aid

Merry Christmas Meela and ding dong merrily on high! Love you. Donation by Kaz and Stephen 25/12/09  

£10.00 + £2.82 Gift Aid

Happy Christmas Nicky. Love and miss you everyday. Mum and James. xxx Donation by Linda Kenyon 25/12/09  

£100.00 + £28.21 Gift Aid

Merry Christmas Johanna Donation by Olof 24/12/09  

£100.00

Happy Christmas Nicky, still thinking of you and your family. All our love and best wishes, Can, Phil and Mimi xxx Donation by Candice 15/12/09  

£20.00 + £5.64 Gift Aid

Donated from The Elements of Lore. This project was helped by my great friend Estelle Hood. For her and for her friend Nicky. Love Harry Donation by Harry Hope 29/11/09  

£776.00 + £218.87 Gift Aid

Another kind donation from people of Normanby! Thank you. x Donation by Linda Kenyon 02/10/09  

£50.00

Thanks for the donation Abi x Donation by Estelle Hood 18/09/09  

£30.00

Well done Nursery 2. Your self portraits were fantabbytastic! Thankyou to your parents for buying them to raise this donation. Miss you Nicklet. E x Donation by Estelle Hood 14/09/09  

£250.00

Been on hols Nicky - but still thinking of you..xx Donation by Sarah Guthrie 19/08/09  

£30.00 + £8.46 Gift Aid

Miss you lots, all our love Sam, Rupert, Nicholas & Oliver xxxx Donation by Samantha West 20/07/09  

£200.00

Remembering you with love today and every day. Mum,Tony & James. XXX Donation by Linda Kenyon 20/07/09  

£200.00 + £56.41 Gift Aid

Meela - Thinking of you always and sending birthday wishes your way for the 4th July, with love and sweets and delicious treats. XX Donation by Caroline and Stephen 05/07/09  

£10.00 + £2.82 Gift Aid

Have been thinking about you - so proud of all you have achieved lol Donation by Jacqui Asher 24/06/09  

£100.00

Thinking of you and your incredible bravery Donation by lawrie smith 16/06/09  

£200.00 + £56.41 Gift Aid

Happy birthday Johanna Donation by Olof 24/05/09  

£100.00

Nicky - you are still very much in my thoughts, V xx Donation by Verity 25/04/09  

£20.00 + £5.64 Gift Aid

Happy Birthday! Your birthday has brought a week of sunshine with it - thank you . xx Donation by Sarah Guthrie 24/04/09  

£30.00 + £8.46 Gift Aid

Happy Birthday Nicky. Miss and love you everyday. Mum, Tony and James. xxx Donation by Linda Kenyon 24/04/09  

£200.00 + £56.41 Gift Aid
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* Total raised online: £105,869.98
  Offline donations: £92,784.00
  Gift Aid plus supplement: £23,779.48

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