Raised so far: £197,402.98
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My story

 

Nicky West’s dream is being followed by family, friends and those she inspired in her life; through Nicky’s Whisper, her voice is still heard.

In life, Nicky worked hard to tell people about Cystic Fibrosis and to raise money to fund gene therapy.  Nicky knew gene therapy would be too late for her, but wanted to help those with CF younger than her and save them the pain and troubles she had to endure.

Through Nicky’s determination and the wonderful support people have shown to Nicky’s Whisper, over £200,000 has been raised in Nicky’s name. 

The Cystic Fibrosis Trust is now at a stage that Nicky would have longed to see; it is embarking on clinical trials for gene therapy for Cystic Fibrosis. The first pilot study begins in February 2009 will involve 27 young adults with CF. They will each have one dose of the gene therapy product - the trial is estimated to finish in the summer of 2009.

Once the results have been analysed and assuming that there have been no adverse effects the Cytic Fibrosis Trust will be embarking on a Phase II clinical trial (involving 100 patients) in 2010. It is estimated that the results should be known in 2012.

This work is complex and expensive and Nicky was passionate about raising funds for it - right until the day she died. She would have been so excited to know that she can still inspire so many people to raise money for a cause that meant so much to her.

This money and her amazing efforts in the last few months of her life have made a huge difference. Please continue to support Nicky's Whisper.

Nicky’s Whisper

Remember me as someone who laughed
Who lived in the present and not in the past
When you think of illness, don’t feel sad
Just remember the good that came from the bad

Remember my voice and songs that I sang
And speeches I gave to help people understand
I lived life to the full and had no regrets
All I ask now is one last request

Follow my dream and spread the word
And through Nicky’s whisper I’ll still be heard

Nicky West 1974-2004

Another kind donation from people of Normanby! Thank you. x Donation by Linda Kenyon 02/10/09  

£50.00

Thanks for the donation Abi x Donation by Estelle Hood 18/09/09  

£30.00

Well done Nursery 2. Your self portraits were fantabbytastic! Thankyou to your parents for buying them to raise this donation. Miss you Nicklet. E x Donation by Estelle Hood 14/09/09  

£250.00

Been on hols Nicky - but still thinking of you..xx Donation by Sarah Guthrie 19/08/09  

£30.00 + £8.46 Gift Aid

Miss you lots, all our love Sam, Rupert, Nicholas & Oliver xxxx Donation by Samantha West 20/07/09  

£200.00

Remembering you with love today and every day. Mum,Tony & James. XXX Donation by Linda Kenyon 20/07/09  

£200.00 + £56.41 Gift Aid

Meela - Thinking of you always and sending birthday wishes your way for the 4th July, with love and sweets and delicious treats. XX Donation by Caroline and Stephen 05/07/09  

£10.00 + £2.82 Gift Aid

Have been thinking about you - so proud of all you have achieved lol Donation by Jacqui Asher 24/06/09  

£100.00

Thinking of you and your incredible bravery Donation by lawrie smith 16/06/09  

£200.00 + £56.41 Gift Aid

Happy birthday Johanna Donation by Olof 24/05/09  

£100.00

Nicky - you are still very much in my thoughts, V xx Donation by Verity 25/04/09  

£20.00 + £5.64 Gift Aid

Happy Birthday! Your birthday has brought a week of sunshine with it - thank you . xx Donation by Sarah Guthrie 24/04/09  

£30.00 + £8.46 Gift Aid

Happy Birthday Nicky. Miss and love you everyday. Mum, Tony and James. xxx Donation by Linda Kenyon 24/04/09  

£200.00 + £56.41 Gift Aid

HAPPY BIRTHDAY NICKLET! I miss you so very much x Donation by Estelle 24/04/09  

£50.00

Money raised at Uncle Ken's birthday party by the people of Normanby. Thank you all for your continued support., Nicky would be very touched by it. xx Donation by Linda Kenyon 16/04/09  

£105.00

inspiring story. as a sufferer myself it means alot to us all for all the help everyone provides to try and beat cf. Donation by Dan 30/03/09  

£10.00 + £2.82 Gift Aid

Merry Christmas Meela, always in our hearts and thoughts XX Donation by Caroline & Stephen 28/12/08  

£10.00 + £2.82 Gift Aid

Happy Christmas Nicky. We love and miss you. Mum, Tony and James. xxx Donation by Linda Kenyon 25/12/08  

£500.00 + £141.03 Gift Aid

Merry Christmas Johanna Donation by Olof 24/12/08  

£100.00

Good luck in the New York Marathon Kennybabes. Focus, belief, persistence! HUGS, E x x x Donation by Estelle 02/11/08  

£50.00

In loving memory of Meela, who left us to live in the clouds but is always in our hearts. Miss you, dude xx Donation by Caroline and Stephen 27/09/08  

£10.00 + £2.82 Gift Aid

In search of a cure. Donation by G&J Worthington 31/08/08  

£20.00

I miss you so much Nicklet. E x Donation by Estelle 20/07/08  

£20.00

Forever in our hearts and missed every day. Lots of love, Mum, Tony & James. xxx Donation by Linda Kenyon 20/07/08  

£500.00 + £141.03 Gift Aid

Happy Birthday Meela! Hope you're having a party with plenty of pink fluff? Donation by Caroline and Stephen 04/07/08  

£10.00 + £2.82 Gift Aid

For Kate, who won your Tribute Award, you're both incredible! Lots of love xx Donation by Emma D 29/05/08  

£50.00 + £14.10 Gift Aid

Happy Birthday Johanna! Donation by Olof 24/05/08  

£100.00

Mummy, happy birthday! I just wish I'd met aunty Nicky. x Donation by Nicholas 12/05/08  

£100.00 + £28.21 Gift Aid

WELL DONE children in Miss Hood’s class for your sponsored walk around McRitchie Reservoir Donation by Tanglin Trust School Ltd 29/04/08  

£243.00

Happy Birthday Nicklet. Always in my thoughts and heart. Miss you so much. E x Donation by Estelle 25/04/08  

£20.00
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* Total raised online: £104,618.98
  Offline donations: £92,784.00
  Gift Aid plus supplement: £23,460.48

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