My story

Nicky West’s dream is being kept alive by her family, friends and those she inspired in her life. Through Nicky’s Whisper, her voice is still heard.

Nicky worked hard to tell people about cystic fibrosis (CF) and to raise money to fund gene therapy. Nicky knew gene therapy would be too late for her, but wanted to help younger people with cystic fibrosis and save them the pain and troubles she had to endure.

Through Nicky’s determination and the wonderful support people have shown to Nicky’s Whisper, over £200,000 has been raised in her name.

Gene therapy research is at a stage that Nicky longed to see. The UK Gene Therapy Consortium (GTC) was funded by the Cystic Fibrosis Trust to develop a gene therapy product to correct the ‘faulty’ CF gene in the lungs. This product is currently in Phase 2B clinical trials, with results eagerly expected in 2014. In March 2013 the Trust awarded a grant of £308,000 for its work to develop a viral vector as a delivery mechanism for gene therapy (Wave 2).

 

This work is complex and expensive, and Nicky was passionate about raising funds for it, right up to the day she died. Nicky would have been very excited to know that she can still inspire so many people to raise money for a cause that meant so much to her.

The money Nicky’s Whisper has raised and Nicky’s amazing efforts in the last few months of her life have made a huge difference. Please continue to support Nicky's Whisper.

Nicky’s Whisper

Remember me as someone who laughed
Who lived in the present and not in the past
When you think of illness, don’t feel sad
Just remember the good that came from the bad

Remember my voice and songs that I sang
And speeches I gave to help people understand
I lived life to the full and had no regrets
All I ask now is one last request

Follow my dream and spread the word
And through Nicky’s whisper I’ll still be heard

Nicky West 1974-2004

CF Trust

Cystic fibrosis (CF) is a life-shortening genetic disease, affecting almost 10,000 people in the UK, slowly destroying the lungs and digestive system. The Cystic Fibrosis Trust is here to beat it and make a daily difference to the lives of those with CF, and the people who care for them.

 

www.cysticfibrosis.org.uk

My gallery 1

My Teams

My company

My charity

Cystic Fibrosis Trust

Cystic Fibrosis Trust

Charity Registration No. 1079049

Cystic fibrosis (CF) is a life-shortening inherited disease, affecting almost 10,000 people in the UK, clogging vital organs with thick sticky mucus. There is presently no cure. We are the UK’s only national charity working for families with CF and to find a cure. www.cysticfibrosis.org.uk

Donations 644

xxx - Miss you.

Donation by Rob Hazlem on 20/07/05

£50.00

+ £14.10 Gift Aid

With love, from Emma and Zachary

Donation by Emma Howell on 20/07/05

£20.00

+ £5.64 Gift Aid

Remembered with love today and every day. Mum, Tony & James xxx

Donation by Linda Kenyon on 20/07/05

£500.00

+ £141.03 Gift Aid

Another very kind donation from the girls of St Swithun's Winchester. Thank you Zara & all involved.

Donation by Linda Kenyon on 20/07/05

£500.00

Elaine and I remember Nicky and all that she represented. Our thoughts are with Sam. xx

Donation by Mr and Mrs D Fraser on 20/07/05

£250.00

+ £70.51 Gift Aid

Collected at my 40th b'day party wish you were there miss you loads xxxx

Donation by Suzanne & Barry on 19/07/05

£300.00

Donation by Mike on 06/07/05

£50.00

+ £14.10 Gift Aid

Happy birthday Johanna & Meela, and thank you from Nicky's Mum.

Donation by linda kenyon on 05/07/05

£100.00

+ £28.21 Gift Aid

This is from my friends @ my b'day party last night. Ta muchly, I love u all. Meela xxx

Donation by Meela on 05/07/05

£87.00

hugely generous reward from the Southey family for our stopping smoking. Thank you!!

Donation by tony kenyon on 04/07/05

£1,000.00

+ £282.05 Gift Aid

happy birthday meela

Donation by Johanna Snellman on 03/07/05

£30.00

To Meela, Happy 21st Birthday! Lots of love, Kaz and Ste xx

Donation by Caroline & Stephen on 03/07/05

£10.00

+ £2.82 Gift Aid

Happy Birthday Jo love u lots Nishaxxx

Donation by Nisha Parekh on 01/07/05

£10.00

+ £2.82 Gift Aid

HAPPY BIRTHDAY MEELA, LOTS OF LOVE X

Donation by Kate on 27/06/05

£10.00

+ £2.82 Gift Aid

Donation by Sarah Hitchens on 27/06/05

£20.00

Happy 21st Meela xx

Donation by Hannah on 20/06/05

£20.00

Miss.Estelle Hood would like to thank students, parents and staff at Tanglin Trust School, Singapore

Donation by Tanglin Trust School Ltd on 14/06/05

£744.00

To thank Rob for a favour, cheers Natalie xxxx

Donation by Project IT Resource on 08/06/05

£75.00

Donation by Anonymous on 03/06/05

£20.00

+ £5.64 Gift Aid

Happy Birthday Johanna!

Donation by Mike Lethem on 02/06/05

£20.00

+ £5.64 Gift Aid

Happy Birthday Johanna talk to you soon, Andy xx

Donation by Andy on 27/05/05

£15.00

+ £4.23 Gift Aid

My birthday present from Daniel Aspelin

Donation by Johanna Snellman on 26/05/05

£15.00

Nicky, you've been in my thoughts lots recently x

Donation by Anna on 25/05/05

£100.00

+ £28.21 Gift Aid

In honour of Johannas 25th Birthday

Donation by NigeEmaThaisHattyGeorgeSmall on 24/05/05

£30.00

+ £8.46 Gift Aid

HAPPY BIRTHDAY JOHANNA! XXX

Donation by Meela on 22/05/05

£10.00

+ £2.82 Gift Aid

Donation summary

  • * Online donations£112,505.67
  • Offline donations£92,784.00
  • Text donations£0.00
  • Total raised£205,289.67
  • Gift Aid£24,309.82

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