My story

Nicky West’s dream is being kept alive by her family, friends and those she inspired in her life. Through Nicky’s Whisper, her voice is still heard.

Nicky worked hard to tell people about cystic fibrosis (CF) and to raise money to fund gene therapy. Nicky knew gene therapy would be too late for her, but wanted to help younger people with cystic fibrosis and save them the pain and troubles she had to endure.

Through Nicky’s determination and the wonderful support people have shown to Nicky’s Whisper, over £200,000 has been raised in her name.

Gene therapy research is at a stage that Nicky longed to see. The UK Gene Therapy Consortium (GTC) was funded by the Cystic Fibrosis Trust to develop a gene therapy product to correct the ‘faulty’ CF gene in the lungs. This product is currently in Phase 2B clinical trials, with results eagerly expected in 2014. In March 2013 the Trust awarded a grant of £308,000 for its work to develop a viral vector as a delivery mechanism for gene therapy (Wave 2).

 

This work is complex and expensive, and Nicky was passionate about raising funds for it, right up to the day she died. Nicky would have been very excited to know that she can still inspire so many people to raise money for a cause that meant so much to her.

The money Nicky’s Whisper has raised and Nicky’s amazing efforts in the last few months of her life have made a huge difference. Please continue to support Nicky's Whisper.

Nicky’s Whisper

Remember me as someone who laughed
Who lived in the present and not in the past
When you think of illness, don’t feel sad
Just remember the good that came from the bad

Remember my voice and songs that I sang
And speeches I gave to help people understand
I lived life to the full and had no regrets
All I ask now is one last request

Follow my dream and spread the word
And through Nicky’s whisper I’ll still be heard

Nicky West 1974-2004

CF Trust

Cystic fibrosis (CF) is a life-shortening genetic disease, affecting almost 10,000 people in the UK, slowly destroying the lungs and digestive system. The Cystic Fibrosis Trust is here to beat it and make a daily difference to the lives of those with CF, and the people who care for them.

 

www.cysticfibrosis.org.uk

My gallery 1

My Teams

My company

My charity

Cystic Fibrosis Trust

Cystic Fibrosis Trust

Charity Registration No. 1079049

Cystic fibrosis (CF) is a life-shortening inherited disease, affecting almost 10,000 people in the UK, clogging vital organs with thick sticky mucus. There is presently no cure. We are the UK’s only national charity working for families with CF and to find a cure. www.cysticfibrosis.org.uk

Donations 644

Donation by David Connolly on 07/10/04

£100.00

+ £28.21 Gift Aid

Truly inspiring

Donation by Holly Brown on 05/10/04

£20.00

+ £5.64 Gift Aid

COME ON KINSLOW!!! Good luck with The Great South Run!

Donation by Estelle Hood on 05/10/04

£30.00

from Ruth & David

Donation by Ruth Kynoch on 04/10/04

£50.00

+ £14.10 Gift Aid

FROM THE BEAUTIFUL CHILD SHE WAS TO THE WOUNDERFUL WOMAN SHE BECAME

Donation by elizabeth tulloch on 03/10/04

£50.00

(Nikki Samsa) Thanks for the inspiring conversation & to Nicky`s Whisper, Inspiration in the www

Donation by Anonymous on 28/09/04

£10.00

+ £2.82 Gift Aid

To an inspirational lady from everyone at MS Consultants

Donation by Maggie Stoker on 28/09/04

£25.00

+ £7.05 Gift Aid

Donation by Anonymous on 23/09/04

£10.00

+ £2.82 Gift Aid

From Jim and Roz Allen who met Nicky at a fundraiser and thought she was inspiring

Donation by Anonymous on 23/09/04

£100.00

+ £28.21 Gift Aid

Donation by Anonymous on 22/09/04

£10.00

+ £2.82 Gift Aid

Raised at our Big Bounce. Thanks to everyone for your help & Nicky for taking care of the weather!!

Donation by Suzanne Hammer on 21/09/04

£1,989.70

+ £561.20 Gift Aid

An inspiration to all; always in our hearts and minds.

Donation by Ritch Bain on 20/09/04

£20.00

+ £5.64 Gift Aid

I only knew her for a day, but she will never be forgotten.

Donation by Ross Grieve on 16/09/04

£50.00

+ £14.10 Gift Aid

Donation by Anonymous on 16/09/04

£10.00

+ £2.82 Gift Aid

Sam - A donation for the shoes! xxx

Donation by Elaine Fraser on 16/09/04

£50.00

+ £14.10 Gift Aid

Donation by Angela Lee on 15/09/04

£20.00

+ £5.64 Gift Aid

kindly donated by Guy in lieu of his gratuity, thank you

Donation by linda kenyon on 14/09/04

£10.00

+ £2.82 Gift Aid

Donation by Anonymous on 13/09/04

£100.00

+ £28.21 Gift Aid

For Nickys Whisper, She was an inspiration to all with Cystic Fibrosis.

Donation by Anonymous on 13/09/04

£10.00

+ £2.82 Gift Aid

HAVING JUST FOUND OUT THAT MY PRECIOUS NEWBORN NIECE OLIVIA HAS CF MY HEART IS HEAVY GLAD TO HELP

Donation by Anonymous on 12/09/04

£100.00

+ £28.21 Gift Aid

Donation by Anonymous on 12/09/04

£50.00

+ £14.10 Gift Aid

Nicky, i really liked your poem. I am on a lung transplant waiting list and you made me more positiv

Donation by Anonymous on 11/09/04

£10.00

Donation by Ian Fairbrother on 09/09/04

£100.00

+ £28.21 Gift Aid

parent of cf daughter, gift for grandparents ruby wedding

Donation by julie parkhouse on 09/09/04

£240.00

+ £67.69 Gift Aid

our hearts are with you as a mother of a child with cf

Donation by chris chivers on 08/09/04

£10.00

+ £2.82 Gift Aid

Donation summary

  • * Online donations$169,902.97
  • Offline donations$140,119.85
  • Text donations$0.00
  • Total raised$310,022.82
  • Gift Aid$36,712.02

* Charities pay a small fee for our service. Find out how much it is and what we do for it.